Notes from the Community, February 2021


Notes from the Community

Reminder About The Patient Notification System

The Patient Notification System (PNS) was established in 1998 to provide a free, confidential, direct-to-registrant system offering information on withdrawals and recalls for plasma-derived and recombinant therapies; as well as other therapies used in the treatment of bleeding disorders.

The PNS recently expanded the notification system to include alerts via text message, which supplement other notification options (email, phone, fax, and first-class USPS mail). The immediacy of text messages and emails ensures registrants receive information about withdrawals and recalls no matter where they might be, further enhancing patient safety. The PNS no longer provides notifications via overnight UPS mailings.

We are very excited to offer PNS alerts via text message and are hopeful many current registrants as well as new enrollees will choose to make text or email their primary notification method.

Please visit www.patientnotificationsystem.org or call 1-888-UPDATE-U to register for the PNS or to change your primary notification method to text messaging. We encourage all HTCs to promote enrollment in PNS to their patients.


Also in this Issue…

Notes from Joe
· Interesting

Legal Update
· State Laws Regulating Pharmacy Reimbursement, ERISA, and the Supreme Court – What Could Rutledge Mean for 340B Covered Entities?

Washington Update
· What’s New in Washington?

Payer Update
· Update on Disease Management Program

Alliance Update
· Introducing our new Board Member
· Harmony in Hemophilia Update
· Membership Dues and Benefits
· 2021 Meeting Schedule