Notes From The Community
The Hemophilia Alliance Foundation Announces Scholarship Winners
The Hemophilia Alliance Foundation Joe Pugliese Educational Award is a scholarship award provided annually to individuals diagnosed with an inherited bleeding or thrombotic disorder in support of post-secondary educational pursuits. The award was initiated to honor Joe Pugliese, who was influential in founding of the Hemophilia Alliance and led the Alliance for many years as President and CEO.
The education award, funded through the generosity of Hemophilia Alliance and The Alliance Pharmacy (TAP), is planned to provide each of four recipients with $12,500 for tuition and/or any qualified educational expense to be used within one academic year of award receipt.
It is a shared goal of Hemophilia Alliance and Hemophilia Alliance Foundation (HAF) that this scholarship program continues for many years to come to ensure that individuals diagnosed with heritable bleeding or thrombotic disorders are supported throughout their professional careers.
This year, the HAF was fortunate to secure one-time additional funding from Hemophilia Alliance and TAP, allowing four additional awards at $10,000 each.
The HAF is pleased to announce this year’s winners:
$12, 500 Awards
- Jesse Chapall
- Ryleigh McFarland
- Isabella Lucha
- Luc Chapall
$10,000 Awards
- Mikaela Kottelich
- Alexander Igielinski
- Damon Hess
- Jamie Valadez-Castaneda
Congratulations to all our winners and the best of luck in your future endeavors.
A huge heartfelt thank you to both Hemophilia Alliance and The Alliance Pharmacy for your generous donations to the scholarship fund.
Impact Grants 2026: Empowering Change, Inspiring Solutions!
by the Hemophilia Alliance Foundation
The Hemophilia Alliance Foundation (HAF) is thrilled to announce the opening of applications for our 2026 Impact Grants!
Since 2009, we’ve been committed to supporting over 140 chapters, treatment centers, regional core centers, and bleeding disorders organizations dedicated to enhancing the lives of those with heritable bleeding and thrombotic disorders.
Formerly known as Innovation Grants, the Impact Grants program continues our commitment to funding meaningful, forward‑thinking projects that strengthen care, expand access, and uplift the bleeding disorders community.
Key Grant Details:
- Grant Amount: Up to three grants of $50,000 per grant available.
- Priority Areas for Funding:
- Capacity Expansion: Support projects that offer new or expanded services or services to currently unserved or underserved bleeding disorders populations.
- Collaboration: Encourage collaboration between two or more organizations.
- Innovation: Foster innovative solutions.
- Who Can Apply:
- Organizations must have IRS tax exempt 501(c)(3) or other nonprofit status.
- National and local organizations exclusively serving persons with heritable bleeding and thrombotic disorders, local hemophilia/bleeding disorders, chapters, Hemophilia Treatment Centers, and HHS-designated regional hemophilia core centers.
Please Note: Grants cannot cover administrative costs, research, event sponsorships, unrelated salaries, promotional items, or recurring expenses.
Key Dates:
- Application Deadline: July 17, 2026
- Project Period: September 1, 2026 – August 31, 2027
Ready to make a difference? Visit our website for more details and to submit your application: https://hemophiliaalliancefoundation.org/grant-information
Need help with your application? We can direct you to additional resources that will help you submit a strong application. Reach out to: Audra Ames, PhD, HAF Administrator at: audra@hemophiliaalliancefoundation.org.
Together let’s make an IMPACT for a brighter, healthier future for those with bleeding and clotting disorders!
340B Grantee Spring Conference 2026
by Karen Bowe-Hause and Heidi Lane
Hemophilia Alliance recently attended the 340B Grantee Spring Conference in Houston, Texas, held May 28 – 30, 2026. We were especially excited to see one of our members, Marisela Trujillo, Director of the Gulf States HTC, featured on a panel discussing navigating uncertainty in the 340B world. Marisela did a great job highlighting the important work HTCs are doing and gave the Alliance several shoutouts for the support we provide. It is always gratifying to see our community represented so well.
The 340B Grantee Conference provides a platform for 340B grantees – including federally qualified Hemophilia Treatment Centers, Ryan White Clinics, federally qualified Health Centers (FQHCs), and FQHC Look-Alikes — to come together to share best practices, learn from experts in the field, and network with colleagues from around the country. Offering presentations, panel and roundtable discussions and workshops, as well as breakout sessions featuring a variety of topics useful to all attendees, the conference is focused on the unique needs and challenges faced by 340B grantees.
The Alliance encourages members to participate in future Grantee Conferences, especially as 340B challenges continue to grow in the current environment. While the Grantee Fall conference typically conflicts with our Member Meeting, we remain committed to supporting increased HTC engagement and exploring opportunities for stronger participation moving forward.
Have a story you want to share or a topic you would like us to cover?
Also In This Issue…
Jeff Weights In
Alliance Board Update
- Welcome New Board Member!
Advocacy and Legal Update
- CMS Releases Rule on Medicaid Work Requirements
- House Appropriations Bill Maintains Funding for Hemophilia Programs
- The Administration Proposes Sweeping Revisions to Rules on Federal Grant Administration
Member and Community Relations Update
- Working with Self-funded Plans: Opportunities and Challenges in 2026
Administration and Operations Update
- Welcoming Mike and Nyla to Team Alliance!
- 2026 Fall Members Meeting & Hill Day: Registration Now Open!
- Nurses Report Strong Practice Impact and High Value from the 2026 Hemophilia Alliance CE Meeting
- PTs Unite in Chicago for the 3rd Annual Hemophilia Alliance CE Conference
- 2027 Meeting Schedules and Save the Dates!