Since it announced its new name last fall, the National Bleeding Disorders Foundation (NBDF) has been working with a team of graduate students at the New York University Wagner School of Public Service on a project supporting NBDF’s rebranding to expand its reach across the blood and bleeding disorder community.

As part of the project, the NYU and NBDF team has developed a Community Engagement Survey directed towards individuals with blood or bleeding disorders and their family members, caregivers, and treaters. The survey seeks insights on needs that respondents feel are currently unmet by NBDF and other patient advocacy organizations.

Please click here to take the short survey. Please share broadly within the blood and bleeding disorders community! We are especially hoping that Alliance members might be able to share with people living with other blood disorders and those who are not already involved with NBDF.

Please contact Johanna Gray at jgray@artemispolicygroup.com with any questions!

Applications Are Open for Annual Partners Physician Academy on September 23-27, 2024

The Partners Physician Academy has been established as a U.S.-based, bleeding disorders-focused educational program delivered by hemostasis/thrombosis experts, intended for second- to fourth-year fellows or early career physicians (up to five years post-fellowship). The program’s goal is to support and accelerate career advancement of physicians in fellowship or those early in their career, for leadership as part of the Hemophilia Treatment Center (HTC) Network.

This 5-day training course will take place September 23-27, 2024 in Indianapolis, Indiana. Participants are expected to arrive in Indianapolis on September 22 and required to attend all days.

The Partners Physician Academy provides an optimal environment that fosters learning and community-building through an interactive program featuring didactic presentations, case discussions, hands-on training, small group breakouts, patient and community voices and perspectives, and direct interaction with nationally recognized HTC leaders. This program is seeking to enroll qualified individuals who demonstrate passion and a commitment to furthering their clinical career, establishing collaborative relationships among the HTC Network, and aspiring to obtain a leadership role within the HTC community.

Visit our website to learn more about the program agenda, covered costs for all selected applicants, and to hear from past participants regarding their Academy experience.

Eligible candidates should be:

• Second- to fourth-year fellow or early career physician (up to 5 years post-fellowship)
• Currently seeing patients in the field of bleeding disorders
• Working or intending to work as part of the federally recognized U.S. HTC Network
• Available to attend the entire academy, September 22-27, 2024

Please consider sharing this exciting opportunity on your website and sending this message to your membership to ensure all eligible candidates are made aware of the program should they wish to apply.

Thank you,
Partners Physician Academy Advisory Board