Hemo Alliance Newsletters

Notes from the Community, September 2021

Notes from the Community

Update from the Hemophilia Alliance Foundation

Congratulations to our 2021 “Innovation Grant” recipients!

Thank you to all of the organizations that applied for the Hemophilia Alliance Foundation’s 2021 Innovation Grant (formerly known as the “Large Grant”). In total, we received nine highly competitive applications for this $50,000 grant, which focuses on high-impact, innovative projects for the inheritable blood disorders community. We are proud to announce the two recipients of the 2021 Innovation Grant: Hemophilia of North Carolina, and the Hemophilia Federation of America!

Website update

The Hemophilia Alliance Foundation has completed a long-awaited update of its website! We have the same URL (https://hemophiliaalliancefoundation.org), and our hope is that the new website will be easier to navigate for applicants and grant recipients. A few new features include:

We would love to hear the community’s feedback on our new website! Please contact Grant Hiura, Secretary, at grant.hiura@hemophiliaalliancefoundation.org if you have any comments/suggestions. Thank you!

Also in this Issue…

Notes from Joe
· Finally, and thank you!

Legal Update
· Reorganization of HRSA and Change in Office of Pharmacy Affairs Leadership

Washington Update
· Washington Update

Payer Update
· Open Enrollment Beginning

Alliance Update
· Meeting Update
· Harmony in Hemophilia – HTC Wall of Walkers Unite Walk Challenge Update

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Jazzmine Brown, MBA, MSW, LCSW jazzmine@hemoalliance.org 770-570-2649
Ashley Castello, MEd ashley@hemoalliance.org 225-266-5062
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Julie Lichterman julie@hemoalliance.org 941-779-5971
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670