Alliance Sponsors Reception for National Youth Leadership Institute (NYLI)
by Karen Bowe-Hause, Director Member & Community Relations

The Hemophilia Alliance was pleased to sponsor the NYLI reception at the Bleeding Disorders Conference in August. The speakers at the event were invited by the Hemophilia Alliance and represented a variety of clinical and non-clinical positions at HTCs. The goal was to help NYLI members understand that they can find engaging and rewarding careers in health care that are both within and outside the traditional clinical roles.

NYLI provides young people (18-24 years old) in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others. NYLI is a two-year program designed to assist young people from the bleeding disorders community in becoming well-trained, recognized leaders. In addition, NYLI provides an amazing opportunity for youth to learn and share experiences of living with a bleeding disorder. NBDF achieves these outcomes by providing young adults with training, support, and opportunities to provide education to the bleeding disorders community.

The Hemophilia Alliance would like to thank all the HTC staff who led the conversations at this session and send a special thank you to the wonderful group of young adults who shared their time with us. Participants from our member HTCs and the Alliance included the following:

Listed below are quotes from several of the HTC and NYLI participants:

“The young adults in this NYLI cohort are incredibly bright and thoughtful – just WOW! They each have exciting and impactful futures ahead. I left the Alliance NYLI Career session feeling inspired by the young adults and my HTC colleagues. 10/10 would do it again.” Eleanor Carrick, Regional Administrator, Mountain States Hemophilia Network.

“It was an honor to meet with the NYLI group at BDC! Although I was invited to share insights about my job role at our HTC, I ended up walking away richer from meeting and learning from these empowered young men and women. The future of the bleeding disorders community is in good hands with these young leaders!” Eric Iglewski, LMSW, Mary M. Gooley Hemophilia Center.

“It was great to meet the NYLI group comprised of such bright, motivated, and kind individuals. To hear their experiences within NYLI- both how the program has helped shape them and how they have helped shape their unique cohort, was impressive and inspirational. It was a pleasure to share about my career; to learn more about the careers of my colleagues and hear about the next steps in the journeys of the NYLI members. Thank you to the Hemophilia Alliance for organizing this session!” Becca Shaheen, HTC

NYLI Participants

“I loved just networking, talking, meeting everyone and loved connecting with others in the community! I really liked talking with the Hemophilia Alliance group especially since I was in a group with social workers, and we really bonded on talking about the importance of mental health.”

“Personally, I learned of many great opportunities that I did not know were available and gained many business cards to help connect back with the wonderful people I met! I wish we had a bit longer in both of these sessions as I did not get to speak to as many people as I would have liked, and often our conversation was cut short due to having to switch places. Overall, I really liked these sessions and would 1000% participate in them again!”

“As for the session at the tables in the atrium, it was also nice! I loved the representation in terms of distinct fields and disciplines. It was a great opportunity for them too, to learn about NYLI. One woman told me she would be advertising the program back at her HTC!! Great programming with these two sessions 😃”