Overview

What We Do

The Hemophilia Alliance is a not-for-profit organization that comprises federally funded hemophilia treatment centers (HTCs) that either have, or are seeking to have, pharmacy programs under Section 340B of the Public Health Service Act.

The purpose of “the Alliance” is to promote the common interests of our member HTCs. In addition to providing support through advocacy, we provide consultant expertise and organizational support in the
following areas:

  • Operations
  • Regulatory compliance
  • Payer relations
  • Legal updates affecting practices
  • Contract pharmacy


As a recognized leader in the bleeding disorder community, we have strong relationships with government agencies, national patient organizations and pharmaceutical manufacturers of factor product. We work on our members’ behalf to make sure they are not disadvantaged, and to promote policies and procedures that lead to successful patient outcomes.

The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.

Learn more about specific HTC Services or Member Benefits.

Our Mission

The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.

Our Vision

Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.

Hemophilia Alliance Timeline

1999 – Hemophilia Alliance starts as a 501(c)(6)

1999

Hemophilia Alliance starts as a 501(c)(6) with 5 members

2006 – Hemophilia Alliance Group Purchasing Group starts as a 501(c)(3)

2006

Hemophilia Alliance Group Purchasing Organization (GPO) starts as a 501(c)(3)

2007 – Hemophilia Alliance GPO get their 1st contract of note

2007

Hemophilia Alliance GPO get their 1st contract of note

2008 – The 501(c)(6) is dissolved

2008
  • The 501(c)(6) is dissolved
  • The board of the 2 organizations are merged
  • The GPO files a d/b/a as “Hemophilia Alliance”
  • Mark Plencner is named as board Chair
  • Joe Pugliese is asked to serve as President

2009 – Hemophilia Alliance gives their first grant to the community a $25,000 grant to NHF

2009

Hemophilia Alliance gives their first grant to the community a $25,000 grant to NHF

2010 – The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy

2010
  • The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy
  • The Hemophilia Alliance enters into a collaborative relationship with Apexus the Prime Vendor
  • Ellen Riker joins the Alliance

2011 – Hemophilia Alliance begins managing and planning the National Hemophilia Social Worker Conference

2011
  • Hemophilia Alliance begins managing and planning the National Hemophilia Social Worker Conference
  • Hemophilia Alliance funds ATHN Dataset Project
  • Jeff Blake becomes board Chair
  • Johanna Gray joins the Alliance
  • Linda Gammage Social Worker Conference begins

2012 – Hemophilia Alliance has their first Hill Day

2012

Hemophilia Alliance has their first Hill Day

2013 – The Hemophilia Alliance Foundation is created as a standalone 501(c)(3)

2013

The Hemophilia Alliance Foundation is created as a standalone 501(c)(3)

2014 – Tamara Vogel becomes board Chair

2014

Tamara Vogel becomes board Chair

2016 – Marisela Trujillo becomes board Chair

2016

Marisela Trujillo becomes board Chair

2017 – Hemophilia Alliance Network Services (HANS) is formed

2017
  • Hemophilia Alliance Network Services (HANS) is formed
  • Hemophilia Alliance invites patients to their Hill Day

2019 – Jennifer Borrillo becomes board Chair

2019

Jennifer Borrillo becomes board Chair

2020 – Hemophilia SNF Access Act

2020
  • Revenue Cycle Management services provided to members
  • Hemophilia Skilled Nursing Facility (SNF) Access Act becomes law

2021 – Heidi Lane becomes board Chair

2021

Heidi Lane becomes board Chair