Overview
What We Do
The Hemophilia Alliance is a not-for-profit organization that comprises federally funded hemophilia treatment centers (HTCs) that either have, or are seeking to have, pharmacy programs under Section 340B of the Public Health Service Act.
The purpose of “the Alliance” is to promote the common interests of our member HTCs. In addition to providing support through advocacy, we provide consultant expertise and organizational support in the
following areas:
- Operations
- Regulatory compliance
- Payer relations
- Legal updates affecting practices
- Contract pharmacy
As a recognized leader in the bleeding disorder community, we have strong relationships with government agencies, national patient organizations and pharmaceutical manufacturers of factor product. We work on our members’ behalf to make sure they are not disadvantaged, and to promote policies and procedures that lead to successful patient outcomes.
The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.
Learn more about specific HTC Services or Member Benefits.
Our Mission
The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.
Our Vision
Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.
Hemophilia Alliance Timeline
1999 – Hemophilia Alliance starts as a 501(c)(6) with 5 members
1999- Hemophilia Alliance starts as a 501(c)(6) with 5 members (Hemophilia of Georgia, Cascade Hemophilia Consortium, Gulf States Hemophilia & Thrombophilia Center, University of Colorado Hemophilia & Thrombosis Center, and Dartmouth-Hitchcock Hemophilia & Thrombosis Center)
- Derek Robertson serves as Executive Director
2005 – Roland Lamy joins the Alliance
2005- Roland Lamy joins the Alliance as Payer Consultant
2006 – Hemophilia Alliance Group Purchasing Group starts as a 501(c)(3)
2006- Hemophilia Alliance Group Purchasing Organization (GPO) starts as a 501(c)(3)
- HAGPO Board of Directors: Mark Plencner, Tim Brent, Ralph Woods, Sally Hartline and Trish Dominic as common as HA/HAGPO common board members
- Joe Pugliese is hired
- University of Pennsylvania becomes first participating member of the GPO
2007 – Hemophilia Alliance GPO get their 1st contract of note with CSL Behring
2007- Hemophilia Alliance GPO get their 1st contract of note with CSL Behring
2008 – The 501(c)(6) is dissolved
2008- The 501(c)(6) is dissolved
- The board of the 2 organizations are merged
- The GPO files a d/b/a as “Hemophilia Alliance”
- Mark Plencner is named as board Chair
- Joe Pugliese is asked to serve as President
- Sean Singh is hired as Vice President
2009 – Hemophilia Alliance gives their first grant to the community a $25,000 grant to NHF
2009- Hemophilia Alliance gives their first grant to the community a $25,000 grant to National Hemophilia Foundation
- Stacia LeBlanc joins the Alliance
- Roland Lamy serves as Vice President of Payer Relations
2010 – The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy
2010- The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy
- The Hemophilia Alliance enters into a collaborative relationship with Apexus the Prime Vendor
- Ellen Riker, Advocate and Lobbyist for the Bleeding Disorders Community joins the Alliance
- Hemophilia Alliance Grants Committee is formed fulfilling a promise to support the Bleeding Disorders Community
- Over $8,000 in Funding to the Bleeding Disorders Community
2012 – Hemophilia Alliance has their first Hill Day
2012- Hemophilia Alliance has their first Hill Day in Washington D.C.
- Bringing HTCs to Capitol Hill to advocate about the Bleeding Disorders Community
- Over $385,000 in Funding to the Bleeding Disorders Community
2013 – The Hemophilia Alliance Foundation is created as a standalone 501(c)(3)
2013- The Hemophilia Alliance Foundation is created as a standalone 501(c)(3)
- Supports Non-Profit organizations within the Bleeding Disorders Community
- Over $1 million in Funding to the Bleeding Disorders Community
2014 – Tamara Vogel becomes board Chair
2014- Tamara Vogel from Oregon Hemophilia Treatment Center becomes board Chair
- Over $870,000 in Funding to the Bleeding Disorders Community
2015 – Advocacy and Legal teams respond to mega guidance
2015- Advocacy and Legal teams respond to mega guidance regarding the 340B program
- Mike Glomb and Elizabeth (Issie) Karan join the Alliance team as Legal Counsel through Feldesman, Tucker, Leifer and Fidell
- Over $1.1 million in Funding to the Bleeding Disorders Community
2016 – Marisela Trujillo becomes board Chair
2016- Marisela Trujillo from Gulf States Hemophilia and Thrombophilia Center becomes board Chair
- Jeff Blake joins the Alliance as Vice President of Payer Relations
- Over $2.1 million in Funding to the Bleeding Disorders Community
2017 – Hemophilia Alliance Network Services (HANS) is formed
2017- Hemophilia Alliance Network Services (HANS) is formed to help provide competitive contracting with payers for HTCs
- Hemophilia Alliance brings patients to our Hill Day
- Jeff Amond joins the Alliance as Director of Payer Relations
- Mark Plencner joins the Alliance as Director of Payer Relations
- Advanced Clinical Conference for Social Workers is named Linda Gammage Social Worker Conference in honor of its founding member
- Over $2.2 million in Funding to the Bleeding Disorders Community
2018 – Over 2.3 millions in Funding to the Bleeding Disorders Community
2018- Over $2.3 million in Funding to the Bleeding Disorders Community
2019 – Jennifer Borrillo becomes board Chair
2019- Jennifer Borrillo from the Louisiana Center for Bleeding and Clotting Disorders becomes board Chair
- Theresa Parker joins the Alliance as Administrator
- Karen Bowe-Hause joins the Alliance as Director of Community Relations
- Over $2.2 million in Funding to the Bleeding Disorders Community
2020 – Hemophilia SNF Access Act
2020- Revenue Cycle Management services provided to members
- Hemophilia Skilled Nursing Facility (SNF) Access Act becomes law
- Alliance seamlessly moves to a virtual platform
- Matching grant to NHF chapters to support educational program and to fund emergency financial assistance during the pandemic
- Over $3.1 million in Funding to the Bleeding Disorders Community
2021 – Heidi Lane becomes board Chair
2021- Heidi Lane from Utah Center for Bleeding and Clotting Disorders becomes board Chair
- Kiet Huynh joins the Alliance as Manager of IT Solutions
- Brought DDAVP Nasal Spray to market to meet community needs
- Co-authored the JBM article
- Over $2.4 million in Funding to the Bleeding Disorders Community
2022 – Jennifer Anders joins the Alliance
2022- Jennifer Anders joins the Alliance as Manager of Data & Analytics
- Over $2.3 million in Funding to the Bleeding Disorders Community
2023 – Eric Gray becomes board Chair
2023- Eric Gray from Indiana Hemophilia and Thrombosis Center becomes board Chair
- Angela Blue joins the Alliance as Director Member & Community Relations
- Zack Duffy joins the Alliance as Director Member & Community Relations
- New structure of Member & Community Relations