Overview
What We Do
The Hemophilia Alliance is a not-for-profit organization that comprises federally funded hemophilia treatment centers (HTCs) that either have, or are seeking to have, pharmacy programs under Section 340B of the Public Health Service Act.
The purpose of “the Alliance” is to promote the common interests of our member HTCs. In addition to providing support through advocacy, we provide consultant expertise and organizational support in the
following areas:
- Operations
- Regulatory compliance
- Payer relations
- Legal updates affecting practices
- Contract pharmacy


As a recognized leader in the bleeding disorder community, we have strong relationships with government agencies, national patient organizations and pharmaceutical manufacturers of factor product. We work on our members’ behalf to make sure they are not disadvantaged, and to promote policies and procedures that lead to successful patient outcomes.
The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.
Learn more about specific HTC Services or Member Benefits.
Our Mission
The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.
Our Vision
Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.
Hemophilia Alliance Timeline
1999 – Hemophilia Alliance starts as a 501(c)(6)
1999Hemophilia Alliance starts as a 501(c)(6) with 5 members
2006 – Hemophilia Alliance Group Purchasing Group starts as a 501(c)(3)
2006Hemophilia Alliance Group Purchasing Organization (GPO) starts as a 501(c)(3)
2007 – Hemophilia Alliance GPO get their 1st contract of note
2007Hemophilia Alliance GPO get their 1st contract of note
2008 – The 501(c)(6) is dissolved
2008- The 501(c)(6) is dissolved
- The board of the 2 organizations are merged
- The GPO files a d/b/a as “Hemophilia Alliance”
- Mark Plencner is named as board Chair
- Joe Pugliese is asked to serve as President
2009 – Hemophilia Alliance gives their first grant to the community a $25,000 grant to NHF
2009Hemophilia Alliance gives their first grant to the community a $25,000 grant to NHF
2010 – The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy
2010- The Hemophilia Alliance signs a Memorandum of Understanding with The Alliance Pharmacy
- The Hemophilia Alliance enters into a collaborative relationship with Apexus the Prime Vendor
- Ellen Riker joins the Alliance
2012 – Hemophilia Alliance has their first Hill Day
2012Hemophilia Alliance has their first Hill Day
2013 – The Hemophilia Alliance Foundation is created as a standalone 501(c)(3)
2013The Hemophilia Alliance Foundation is created as a standalone 501(c)(3)
2014 – Tamara Vogel becomes board Chair
2014Tamara Vogel becomes board Chair
2015 – Advocacy and Legal teams respond to mega guidance
2015Advocacy and Legal teams respond to mega guidance
2016 – Marisela Trujillo becomes board Chair
2016Marisela Trujillo becomes board Chair
2017 – Hemophilia Alliance Network Services (HANS) is formed
2017- Hemophilia Alliance Network Services (HANS) is formed
- Hemophilia Alliance invites patients to their Hill Day
2019 – Jennifer Borrillo becomes board Chair
2019Jennifer Borrillo becomes board Chair
2020 – Hemophilia SNF Access Act
2020- Revenue Cycle Management services provided to members
- Hemophilia Skilled Nursing Facility (SNF) Access Act becomes law
2021 – Heidi Lane becomes board Chair
2021Heidi Lane becomes board Chair