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What We Do

What We Do

The Hemophilia Alliance is a not-for-profit organization that comprises federally funded hemophilia treatment centers (HTCs) that either have, or are seeking to have, pharmacy programs under Section 340B of the Public Health Service Act.

The purpose of “the Alliance” is to promote the common interests of our member HTCs. In addition to providing support through advocacy, we provide consultant expertise and organizational support in the
following areas:

Overview

As a recognized leader in the bleeding disorder community, we have strong relationships with government agencies, national patient organizations and pharmaceutical manufacturers of factor product. We work on our members’ behalf to make sure they are not disadvantaged, and to promote policies and procedures that lead to successful patient outcomes.

The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.

Learn more about specific HTC Services or Member Benefits.

Our Mission

The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.

Our Vision

Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.

Our Timeline

  • 2024 – Jeff Blake becomes President & CEO

    • Jeff Blake becomes President & CEO of Hemophilia Alliance
    • Jennifer Borrillo joins the Alliance as Senior Vice President Member & Community Relations

  • 2023 – Eric Gray becomes board Chair

  • 2022 – Jennifer Anders joins the Alliance

    Over $2.3 million in Funding to the Bleeding Disorders Community

  • 2021 – Heidi Lane becomes board Chair

    • Heidi Lane from Utah Center for Bleeding and Clotting Disorders becomes board Chair
    • Kiet Huynh joins the Alliance as Manager of IT Solutions
    • Brought DDAVP Nasal Spray to market to meet community needs
    • Co-authored the JBM article
    Over $2.4 million in Funding to the Bleeding Disorders Community

  • 2020 – Hemophilia SNF Access Act

    • Revenue Cycle Management services provided to members
    • Hemophilia Skilled Nursing Facility (SNF) Access Act becomes law
    • Alliance seamlessly moves to a virtual platform
    • Matching grant to NHF chapters to support educational program and to fund emergency financial assistance during the pandemic
    Over $3.1 million in Funding to the Bleeding Disorders Community

  • 2019 – Jennifer Borrillo becomes board Chair

    Over $2.2 million in Funding to the Bleeding Disorders Community

  • 2018 – Over 2.3M in Funding to the Bleeding Disorders Community

    Over $2.3 million in Funding to the Bleeding Disorders Community

  • 2017 – Hemophilia Alliance Network Services (HANS) is formed

    • Hemophilia Alliance Network Services (HANS) is formed to help provide competitive contracting with payers for HTCs
    • Hemophilia Alliance brings patients to our Hill Day
    • Jeff Amond joins the Alliance as Director of Payer Relations
    • Mark Plencner joins the Alliance as Director of Payer Relations
    • Advanced Clinical Conference for Social Workers is named Linda Gammage Social Worker Conference in honor of its founding member
    Over $2.2 million in Funding to the Bleeding Disorders Community

  • 2016 – Marisela Trujillo becomes board Chair

    • Marisela Trujillo from Gulf States Hemophilia and Thrombophilia Center becomes board Chair
    • Jeff Blake joins the Alliance as Vice President of Payer Relations
    Over $2.1 million in Funding to the Bleeding Disorders Community

  • 2015 – Advocacy and Legal teams respond to mega guidance

    • Advocacy and Legal teams respond to mega guidance regarding the 340B program
    • Mike Glomb and Elizabeth (Issie) Karan join the Alliance team as Legal Counsel through Feldesman, Tucker, Leifer and Fidell
    Over $1.1 million in Funding to the Bleeding Disorders Community