Washington Update, April 2023

Washington Update

Reminder: Register for the June Hemophilia Alliance Hill Day!
by Johanna Gray, Advocacy Consultant

Hi, all! We really hope to see you at the Alliance Hill Day in June! There is SO much going on in Washington and it is so important that Alliance members come to DC to tell your story. From groups releasing principles for 340B reform that would be very harmful to HTCs, to potential action on copay accumulator adjustors in the House and the Senate, as well as policies that could affect access to Medicaid, which we know covers about a third of the bleeding disorders population… we need you to join us in DC!

We’re headed back to the Hill IN PERSON! Please join us for the 2023 Hemophilia Alliance Hill Day, June 12th & 13th in Washington, D.C. All Alliance members and their patients are invited to join us to advocate for the bleeding disorders community. See below for more details.

When: Monday, June 12th & Tuesday, June 13th 2023 (Training on the evening of 6/12, Hill meetings on 6/13)

Why: Since there are so many new Members of Congress and staffers, we will be educating Senators and Representatives and their staff members about bleeding disorders, HTCs, and the importance of the 340B Program to our community. We need your help to ensure policymakers understand our issues and continue to support the comprehensive care model for patients with bleeding and clotting disorders for years to come.

Who: We hope that many Alliance members will participate. We encourage you to also recruit a patient* from your center to join you.

Next Steps: Please click here to register to participate. The deadline for registration is MAY 12, 2023.

Any questions? Please contact Johanna Gray at jgray@artemispolicygroup.com or 703-304-8111.

*Patients airfare, accommodations and ground transportation in DC will be paid by the Hemophilia Alliance.

Also in this Issue…

Notes from Joe
· Dateline: Orlando, Florida

Legal Update
· 340B Contract Pharmacy Services Agreement: Some Rules and Many Pitfalls

Alliance Update
· We Need Your Help: Look for the HTC Needs Assessment

Payer Update

Notes from the Community
· The Hemophilia Alliance Foundation Update: 2023 Project/Patient Assistance Grants
· NHF – 2023 Unite for Bleeding Disorders National Walk and the HTC Wall of Walkers Challenge
· Update on FAIR Time for Women
· Webinar Announcement from the Foundation for Women and Girls with Bleeding Disorders

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