Washington Update, March 2023

Washington Update

Register for the Hemophilia Alliance Hill Day this June!
by Johanna Gray, Advocacy Consultant

We’re headed back to the Hill IN PERSON! Please join us for the 2023 Hemophilia Alliance Hill Day, June 12th & 13th in Washington, D.C. All Alliance members and their patients are invited to join us to advocate for the bleeding disorders community. As Joe noted above in Notes from Joe, there is a LOT happening in DC related to HTCs, 340B, and the access to care issues that are important to Alliance members. If you’ve ever been on the fence about coming to DC, we really need you this year! See below for more details.

When: Monday, June 12th & Tuesday, June 13th 2023 (Training on the evening of 6/12, Hill meetings on 6/13)

Why: Since there are so many new Members of Congress and staffers, we will be educating Senators and Representatives and their staff members about bleeding disorders, HTCs, and the importance of the 340B Program to our community. We need your help to ensure policymakers understand our issues and continue to support the comprehensive care model for patients with bleeding and clotting disorders for years to come.

Who: We hope that many Alliance members will participate. We encourage you to also recruit a patient* from your center to join you.

Next Steps: Please click here to register to participate. The deadline for registration is MAY 12, 2023.

Any questions? Please contact Johanna Gray at jgray@artemispolicygroup.com or 703-304-8111.

*Patients airfare, accommodations and ground transportation in DC will be paid by the Hemophilia Alliance.

Also in this Issue…

Notes from Joe
· Dateline: Washington, DC
· Product Update

Alliance Board Update
· Alliance Seeking Board Nominations

Alliance Update
· The Alliance Upcoming Events Webpage – A New Look & Feel

Payer Update
· HANS PPO Agreement 42 signed, 65 To Go

Notes from the Community
· Update on Partners Physician Academy
· Collaboration Updates with our National Organization Partners

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