Administration and Operations Update
Welcoming Julie to Team Alliance!
We’re excited to introduce Julie Lichterman, our new Administrative Assistant who joined Team Alliance in May.
Julie brings experience in healthcare marketing, community outreach, and operational leadership. Since earning her Master’s in Public Health from the University of South Florida in 2022, she has worked on health campaigns, helped organize community events, and supported the growth of medical practices. We’re looking forward to Julie’s skillset contributing to our team’s work in supporting our members.
Outside of work, Julie enjoys exploring new painting techniques, training for her next 10k race, and spending time with her family.
Please join us in welcoming Julie—we’re happy to have her on board!
Get Ready for Our Fall Members Meeting & Hill Day!
We’re shaking things up this year—Hill Day is moving to the Fall! Mark your calendars and get ready for a powerful few days in Washington, D.C., packed with connection, advocacy, and inspiration.
- Sunday, October 5: Kick things off with a warm welcome at our evening reception. This is an ideal time to reconnect with colleagues and make new connections.
- Monday, October 6: The day kicks off with engaging presentations and discussions, leading into the “Washington Update,” an insightful Hill Day training session, and concluding with a lively group dinner.
- Tuesday, October 7: It’s time to take our message to Capitol Hill! Join us as we meet with legislators to share vital information and raise awareness about the needs of the bleeding disorders community.
Registration is now open—secure your spot today! Once we receive the booking link from the hotel, it will be emailed out to those that have already registered AND will be available on our website.
We’re also looking for patients and families in the bleeding disorders community willing to share their experiences to join their HTC in meetings with lawmakers. Personal experiences make a powerful impact—if you know someone who would be comfortable sharing their journey with legislators, please reach out to Theresa Parker at theresa@hemoalliance.org
Let’s make this Fall Hill Day unforgettable—see you on the Hill!
Unlocking Insights: The Data Portal
The Hemophilia Alliance continues to advance our resources for our member HTCs, and one of our tools is the Hemophilia Alliance Data Portal. The Data Portal is used to track monthly product purchases.
Benefits of tracking monthly purchases made under the Alliance GPO contracts are:
- Improved HTC pharmacy business insights
- Informed decision making
- Greater potential for savings and rebates
If you have any questions about our data portal or about who at your HTC is using the data portal, please reach out to Jennifer Anders.
Data Portal FAQs:
- Data Portal Log in: Your data portal login is separate from your Alliance member website login
- Data Portal Password: Never share your password for the data portal
- Data Portal Users: If additional users are needed, then we can issue them their own logins
Login to our website and click here to login to the Data Portal. Learn more and discover new ways that the Alliance can support your organization’s mission in providing exceptional care for the bleeding disorders community.
Plan Ahead: 2026 Hemophilia Alliance Meeting Calendar is Here
Hemophilia Alliance hosts eight in-person meetings annually, with four offering CEUs. As a member benefit, these gatherings provide valuable opportunities for networking and exchanging best practices. Whether you’re looking to learn, connect, or collaborate, our meetings are designed to support your success. Dive into the details of our Alliance meetings here. Be sure to mark your 2026 calendars and Save the Date!
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Also In This Issue…
Jeff Weighs In
Awards and Recognition
Recognizing Excellence: The 2025-2026 Joe Pugliese Educational Award Recipients
Celebrating Collaboration: Hemophilia Alliance awarded BDA of South Carolina’s 2024-2025 Appreciation and Partnership Award
Advocacy and Legal Update
- Budget Reconciliation Bill Moves to Senate – Significant Impacts to Health Coverage
- Trump Administration Releases Additional Budget Documents for FY 2026
Member and Community Relations Update
- MCRs In the Community
Notes From The Community
- VWD Connect Foundation Holds 9th Annual Severe Von Willebrand Disease Patient Conference in July