Hemo Alliance Newsletters

Alliance Board Update, July 2024

Alliance Board Update

Alliance Seeking Board Nominations
by Becky Burns, Vice Chair, Hemophilia Alliance Board

The Hemophilia Alliance Board Nominating Committee is seeking applicants or suggested nominations to fill vacancies on the board of directors. For consideration by the nominating committee, applicants are to submit a letter of interest and resume or CV to becky@ilbcdi.org by Friday, August 16, 2024. We seek to broadly represent our membership and are encouraging applicants from all regions and disciplines to apply.

Applicants or suggested nominees must be employed by a Hemophilia Treatment Center in good standing with the Hemophilia Alliance, support the Hemophilia Alliance mission, vision and programs, and be willing to share their knowledge and expertise with the Hemophilia Alliance, participating in bi-monthly board meetings.

Terms are for a 3-year period, not to exceed 2 consecutive terms. In a typical year, the Board meets six times per year, three via conference call and three in-person. Two of the in-person meetings occur at the Hemophilia Alliance membership meetings and one board retreat takes place in January.

Our Mission
The Hemophilia Alliance works to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders.

Our Vision
Through the work of the Hemophilia Alliance, the clinical and pharmacy programs of the Hemophilia Treatment Centers are integrated, stable and sustainable within a changing healthcare environment. They are trusted and respected as the preferred way to provide people with hemophilia and other bleeding disorders access to the full range of care they need.

For more information about the Hemophilia Alliance visit our website hemoalliance.org.

FAQs
What does it cost to be on the board?
There is no cost to be on the board.

When does the board meet?
Two in person meetings occur at the Hemophilia Alliance membership meetings, one board retreat takes place in January and three conference calls take place on the fourth Thursday of the month at 2pm EST.

What are the qualifications or degrees needed to be on the board?
You must be employed by the HTC and in good standing with the Hemophilia Alliance with previous committee or board experience. No other qualifications or degrees are needed.

Do I need to hold a particular role in the HTC?
No.

Does my program have to be a large program to be on the board?
Candidates from all types of centers from new startup centers to well established programs are encouraged to apply.

What are some of the things I should include in my letter of interest?

  • Your role with the factor distribution program.
  • Things that interest you in serving on the Hemophilia Alliance board and what you feel you will bring as a member of the board.
  • Include your experience with local, regional, national committees or boards related to hemophilia and related bleeding and clotting disorders.

If you have any additional questions please feel free to contact me at becky@ilbcdi.org.

Also In This Issue…
Jeff Weighs In
Member and Community Relations Update
  • Genetic Testing Program Launched by Hemophilia Alliance
Advocacy and Legal Update
  • 340 Reform Bill Introduced in House
  • SCOTUS Opinion Ends Deference to Agency Interpretations – What Could this Mean for the 340B Program?
  • U.S. Federal Trade Commission (FTC) Releases Scathing Report on PBMs
Administration and Operations Update
  • Welcome to Our New Online Home
  • Hemophilia Alliance’s 1st Annual Nurses Continuing Education Conference
  • Upcoming Meetings
Notes From The Community
  • Do you have a passion for sharing your knowledge and experience in hemophilia care and management?

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670