Alliance Update, June 2024

Administration and Operations Team Update
  • Don’t Miss Out! Navigating Patient Assistance and Copay Assistance Schemes Webinar
  • The Hemophilia Alliance will be presenting a special webinar on understanding the difference between Copay Accumulators, Copay Maximizers, and Alternative Funding Programs. This webinar will be held on July 11 at 1:00pm EST. Click here to register.

    In this comprehensive session, attendees will gain a deep understanding of three critical elements of the difference between patient access barriers: copay accumulators, copay maximizers, and alternative funding programs. This talk will demystify these concepts, explain how each mechanism operates, their impact on patients’ out-of-pocket costs, and the broader implications for patients, providers and insurers.

    By the end of this session, attendees will be equipped with the knowledge and tools to better understand the nuances of copay accumulators, copay maximizers, and alternative funding programs. They will leave with actionable strategies to support patients in managing their out-of-pocket costs while maintaining access to essential medications.

    Speakers:

    Becky Burns
    Becky Burns
    COO & CFO of the Bleeding and Clotting Disorders Institute, Peoria, IL
    Click here to learn more about Becky.
    Kollet Koulianos
    Kollet Koulianos
    Hemophilia Alliance Payer Relations Consultant
    Click here to learn more about Kollet.

  • Re-cap of the 1st Annual Hemophilia Alliance Physical Therapy Conference
  • by Heidi Lane (Chair, PT Meeting Committee)

    This May the first annual Hemophilia Alliance Physical Therapy CE Conference in Denver, Colorado was held, and all attending felt it was a resounding success. Forty-two physical therapists from member HTCs across the country, including Hawaii, were in attendance. The conference featured a combination of didactic sessions and hands-on labs, with ample time for discussion and sharing of best practices. Topics included a 340B overview, the Hemophilia Joint Health Score (HJHS), use of orthotics as a PT intervention, the importance of rest in acute bleed management, and point of care musculoskeletal ultrasound (MSKUS) for joint health assessment.


    [Click on image for larger version]

    The networking opportunities for new and seasoned therapists enriched the learning experience, fostered a sense of community and left attendees feeling rejuvenated to head back to their respective HTCs. Over 90% of attendees reported being “very satisfied” with the conference and when surveyed about their single favorite part of the meeting, more than 50% of attendees reported “networking” and another 20% reported the “lab/lecture” format. A big thank you to the Hemophilia Alliance Team that planned and supported the conference, Sanofi, the Denver Hemophilia Treatment Center, the planning committee, and session speakers for this great opportunity for professional development and networking!


  • Upcoming Meetings
  • MEETING DATE
    Hemophilia Alliance Fall Member Meeting [REGISTER NOW] October 9 – 11, 2024
    Hemophilia Alliance Physicians & Business Administrators Meeting [REGISTER NOW] November 14 – 17, 2024
    2025 Pharmacist CE Conference [SAVE THE DATE] January 22 – 24, 2025
    2025 Linda Gammage Social Worker CE Conference [SAVE THE DATE] February 26 – 28, 2025

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· New Research on 340B Program Spending Highlights Differences Among Covered Entities
· 340B Reporting Requirement Added to Medicare Telehealth Bill

Member and Community Relations Update
· MCR’s In the Community – MCR Team

Notes from the Community
· VWD Connect Foundation Annual Conference in July: REGISTRATION STILL AVAILABLE!
· Navigating the Future, Together!

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