News

Alliance Update, August 2020

I am happy to announce the launch of our new campaign, Harmony in Hemophilia, aimed at enhancing relationships between our member HTCs, NHF Chapters and HFA Member Organizations.

Payer Update, August 2020

· Welcome Kimberly Lackman, the Newest Alliance Employee! ·Payer Relations Update

Washington Update, August 2020

As of this writing, the Congressional August recess is waning and all eyes turn to the September calendar, which holds several challenges for policymakers.

Legal Update, August 2020

Under the auspices of 340B Program compliance, manufacturers recently requested extensive data from covered entities related to drugs dispensed through contract pharmacies.

Notes from Joe, August 2020

Wow, after waiting 25 plus years for a gene therapy product for the hemophilia community, it never occurred to me that Biomarin’s product would be rejected by the FDA last week with a call for additional data on the durability of their product.