Latest News
Notes from the Community, June 2024
Notes from the Community VWD Connect Foundation Annual Conference in July: REGISTRATION STILL AVAILABLE! VWD Connect Foundation (VCF) will be holding the 8th Annual National Type 3/Severe Von Willebrand Disease Read the full article…
May 2024 Newsletter
In this Issue… Jeff Weighs In Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Advocacy and Legal Update · Hill Day Read the full article…
Jeff Weighs In, May 2024
Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Read the full article…
Alliance Update, May 2024
Marketing and Operations Team Update Spring Is In The Air by Marketing & Operations Team Last month, our annual Spring Members Meeting and Hill Day in Washington D.C. brought together Read the full article…
Advocacy Update, May 2024
Advocacy and Legal Update Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News by Elizabeth ‘Issie’ Karan, Legal Counsel Earlier this year, the Cordes Family participated Read the full article…
MCR Update, May 2024
Member and Community Relations Team Update HANS Agreement with Emerging Therapy Solutions (ETS) for Gene Therapy Products by Angela Blue, Director Member and Community Relations The Hemophilia Alliance is Read the full article…