Alliance Update, November 2020

Alliance Update

Announcing our New Board Member
By Heidi Lane, Vice Chair and Chair of the Nominating Committee and Jennifer Borrillo, Chair

The mission of the Hemophilia Alliance is to work “to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders”. Per the Hemophilia Alliance by-laws, “The Board of Directors should, to the extent feasible, include members representative of the eight (8) regional networks of hemophilia treatment centers, types of programs, expertise, and experience."

We want to sincerely thank all applicants for their interest in serving on the board. We thoughtfully reviewed and considered all applicants in the context of the Mission and by-laws, seeking to most broadly represent our membership as well as diversify our expertise and insight to most strategically address challenges to further our mission.

We are pleased to announce Kimo Stine, MD has been elected to serve on the Board, beginning January 2021. Dr Stine, the Medical Director for the Arkansas Center for Bleeding Disorders, is a Professor of Pediatrics at the University of Arkansas for Medical Sciences, practicing at Arkansas Children’s Hospital in Little Rock, Arkansas. Dr Stine brings to this position over 20 years of leadership at his HTC, which included establishing their 340B program roughly 11 years ago. Dr Stine states their “…program is an example of how the mission and vision of the Alliance can be implemented to allow for growth of a program with the ultimate goal to improve services and care to patients and families with bleeding disorders”.

Again, we can’t thank enough the individuals who applied to serve on the board. We may be reaching out to you to assist in serving the Alliance in other ways. The next board opening(s) will be in Spring 2022. Finally, Happy Holiday Season to all!

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Meeting Schedule for 2021

Spring Members Meeting – Virtual
Hill Day – Virtual
Linda Gammage Social Worker Conference – Fall
New HTC Staff Meeting – Fall
Fall Members Meeting – September 2021

Also in this Issue…

Notes from Joe
· The Light at the End of the Tunnel

Legal Update
· HHS Continues Its “Regulatory Sprint”

Washington Update

Payer Update
· Payer Update: 35 and Growing!

Notes from the Community
· Plasminogen Deficiency Foundation Launched