Alliance Update, September 2021

Alliance Update
  • Keep your fingers crossed
    by Sean Singh

    We have cancelled all of our in-person meetings for the remainder of 2021. While we were hoping to see many of you this year in person we will look forward to seeing you in 2022. We have worked on our schedule for the first few months of 2022 and hope that you keep your fingers crossed that we can get together. We will keep a close eye on how things progress and will update you as soon as we can with information. If there is a conflict with dates of other meetings, please contact Sean. He can be reached at or 727-388-7326.

      January 2022

        9th to 11th – Board Retreat: Board Only
        26th to 28th – Pharmacy CE Conference


        6th to 8th – New HTC Staff Meeting
        23rd to 25th – Linda Gammage Social Worker Conference


        3rd to 5th – Spring Members Meeting
        TBD – Hemophilia Alliance Hill Day


        TBD – Up and Coming (small centers) member meeting

  • Harmony in Hemophilia – HTC Wall of Walkers Unite Walk Challenge Update
    by Karen Bowe

    Our initiative to enhance relationships between HTCs and Chapters and to increase HTC participation in NHFs Unite Walk program is working! So far, we have 24 HTC teams registered. As the walk season gets into full swing in September and October, we anticipate registrations will continue to increase. As of 9/20/21, we have surpassed what the 2020 HTC teams raised in total and we are just approaching the heart of walk season with most walks happening mid-September to early October!

    HTC team registration drive: All HTC teams that are currently registered and/or register by Sept 24th and receive at least one donation of any size will be entered into a drawing of chance to earn (5 winners total)

    • Swag Bag w/special Unite for Bleeding Disorders and Hemophilia Alliance items
    • (4) $250 cash contributions to their walk team

    All teams that participate will be showcased on the NHF Unite Walk HTC Wall of Walkers! Important: Please make sure to take a group picture on Walk Day and submit photo and/or logo to

    The 5 highest fund-raising teams will receive a $1000 travel scholarship to the 2022 NHF Bleeding Disorders Conference to be held in Houston, TX Aug 25th – 27th. The Hemophilia Alliance thanks everyone for your participation and efforts to benefit your local Chapter.

    Happy Walking!!

Also in this Issue…

Notes from Joe
· Finally, and thank you!

Legal Update
· Reorganization of HRSA and Change in Office of Pharmacy Affairs Leadership

Washington Update
· Washington Update

Payer Update
· Open Enrollment Beginning

Notes from the Community
· Update from the Hemophilia Alliance Foundation

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