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kietadmin

Author: kietadmin

backup/renamed from Joel's. renamed from kxp to kiet@hemoalliance.org

Alliance Update, August 2020

I am happy to announce the launch of our new campaign, Harmony in Hemophilia, aimed at enhancing relationships between our member HTCs, NHF Chapters and HFA Member Organizations.

Washington Update, August 2020

As of this writing, the Congressional August recess is waning and all eyes turn to the September calendar, which holds several challenges for policymakers.

Legal Update, August 2020

Under the auspices of 340B Program compliance, manufacturers recently requested extensive data from covered entities related to drugs dispensed through contract pharmacies.

Notes from Joe, August 2020

Wow, after waiting 25 plus years for a gene therapy product for the hemophilia community, it never occurred to me that Biomarin’s product would be rejected by the FDA last week with a call for additional data on the durability of their product.

August 2020 Newsletter

Notes from Joe
· Not Quite at the Finish Line Yet

Legal Update
· Protecting HTC Data Requires Reading the Fine Print

Washington Update

Payer Update
· Welcome Kimberly Lackman, the Newest Alliance Employee!
· Payer Relations Update

Alliance Update
· Alliance, NHF and HFA Launch the Harmony in Hemophilia Campaign

Notes from the Community
· Announcing Year 1 of Hemophilia Alliance Foundation Large Grant Award Winners

Notes from the Community, Hill Day 2020

It is with great pleasure that the Hemophilia Alliance Foundation Board is able to offer an additional round of applications for COVID-19 Relief for Patient Assistance.

Payer Update, Hill Day 2020

As many of you know we have been working the last 12 months to develop and implement the Hemophilia Alliance Network Services (HANS) HTC PPO Network.