Notes from Joe Gene Therapy is Here, Now What? by Joe Pugliese, President and CEO Since its inception in 1999, the Hemophilia Alliance has seen significant growth in the research Read the full article…
Notes from the Community First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials by Hemophilia Outreach Center – Green Bay, WI In a recent press release, the Hemophilia Outreach Read the full article…
Advocacy Update Washington, DC’s HOT July by Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Congress has returned from its July 4th Recess with a full plate for the remainder of Read the full article…
Legal Update Lawsuits on Implementation of Medicare Drug Pricing Negotiation by Elizabeth “Issie” Karan, Hemophilia Alliance Legal Counsel In recent weeks, pharmaceutical manufacturers, including Merk, Bristol-Myers Squibb, and PhRMA, and Read the full article…
In this Issue… Notes from Joe · Going, Going …… Not so fast Notes from the Community · UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound · Reminder: The Read the full article…
Notes from Joe Going, Going …… Not so fast by Joe Pugliese, President and CEO I have been working with the Executive Committee of the Hemophilia Alliance Board for the Read the full article…
Notes from the Community UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound by Marlene Zepeda, UC San Diego The UC San Diego Hemophilia and Thrombosis Treatment Center is offering Read the full article…
Alliance Update New Product Guide Available by Theresa Parker, Administrator The Hemophilia Alliance team recently worked with Dr. Stacy Croteau to update our product guide for the Bleeding Disorders community. Read the full article…
Payer Update State Medicaid Redetermination in Process NOW by Angela Blue, Director Member & Community Relations Many HTC patients may be at risk of losing coverage, or having their Medicaid Read the full article…
In this Issue… Notes from Joe Notes from the Community · Announcing: The 4th Annual Innovation Grant · HTC DSCSA Update · Not Your Ordinary Mascot! · VWD Connect Foundation Read the full article…
