Notes from Heidi and Joe Serving Members Where They Are by Joe Pugliese and Heidi Lane Dear Bleeding Disorders Community, The Alliance serves all our members wherever they may be. Read the full article…
DISCLAIMER: This forum is for discussions about Gene Therapy coming to market through the Hemophilia Treatment Centers. Please note your comment must be approved by the Alliance before appearing on Read the full article…
In this Issue… Notes from Joe · Access to the Best Care Alliance Board Update · Board Update – Welcome Colleen Druzgal, M.D. Alliance Update · Join the Alliance as Read the full article…
Notes from Joe Access to the Best Care by Joe Pugliese, President and CEO The Hemophilia Alliance hosted one of the more extraordinary meetings held in the bleeding disorders community, Read the full article…
Alliance Update Join the Alliance as we Support the NHF United for Bleeding Disorders Walk Challenge by Karen Bowe, Director Community Relations
Legal Update Genesis Healthcare Inc. v. Becerra: Reevaluating HRSA’s Regulatory Authority for the 340B Program by Elizabeth “Issie” Karan, Legal Counsel While lawsuits related to the 340B Discount Drug Program Read the full article…
Washington Update by Johanna Gray, Advocacy Consultant All eyes in Washington are turning towards the Senate, which is likely to consider drug pricing reforms as part of a reconciliation package Read the full article…
Payer Update Cost of Dispensing Survey: That’s a Wrap! by George L. Oestreich, PharmD, MPA, Government Payer Consultant The payer team has been working with Mercer on the Cost of Read the full article…
Allilance Board Update Board Update – Welcome Colleen Druzgal, M.D. by Eric Gray, Vice Chair We are delighted to announce that Colleen Druzgal, M.D., has joined the Alliance Board of Read the full article…
If you plan on attending the NHF BDC meeting and would like to attend the follow up meeting, please register your spot here!
