Notes from the Community Monitoring the Impact of Gene Therapy in Persons with Hemophilia by Crystal Watson, President and CEO of ATHN Gene therapy carries the potential for a functional Read the full article…
In this Issue… Notes from Joe · You Never Know! Alliance Update · 2022 Spring Meeting Schedule · New Member Maps Legal Update · Rebates Under the Uniform Grants Guidance: Read the full article…
Notes from the Community Hemophilia Alliance has joined the Blood Diseases and Disorders Education Program’s Blood Health Network. Our goal is to learn how the program and our new partner Read the full article…
Alliance Update 2022 Spring Meeting Schedule by Sean Singh Board Retreat (Board Members and HA Staff Only) January 9th to 11th Pharmacists CE Conference January 26th to 28th New HTC Read the full article…
Allilance Board Update Alliance Seeking Board Nominations by Eric Gray, CPA, Vice Chair, Hemophilia Alliance Board The Hemophilia Alliance Board Nominating Committee is seeking applicants or suggested nominations to fill Read the full article…
Legal Update Rebates Under the Uniform Grants Guidance: No Such Thing as a Free Lunch by Elizabeth “Issie” Karan & Michael B. Glomb Hemophilia Treatment Centers (HTCs) have asked whether Read the full article…
Notes from Joe You Never Know! by Joe Pugliese Way back in 2009, we were trying to get a national payer to contract with all Alliance members (a grand total Read the full article…
Hemophilia Alliance Comments 340B Grantee Comments National Hemophilia Foundation Comments 340B Coalition Comments Hemophilia Federation of America Comments Octapharma Letter of Support Emergent Letter of Support View Document Here
View full PDF: click here
Hemophilia Alliance Comments on Grant Reform Click here to read this document Update on Affordable Care Act Implementation Click here to read this document
