Payer Update Request for Coverage of Desmopressin Acetate Nasal Spray (DDAVP) In August of 2021, in a combined effort with the National Hemophilia Foundation (NHF) and Hemophilia Federation of America Read the full article…
In October 1992, there were 5 NHF men (depicted in picture) who were determined to change the NHF narrative. The picture depicts Jonathan Botello, Dana Kuhn, Val Bias, Rich David, Read the full article…
In this Issue… Notes from Joe· Looking Back, Planning Ahead Legal Update· Not the Old, Not the New, but the Necessary: Legal Review of 2021 Washington Update· Year in Review Read the full article…
Notes from Joe Looking Back, Planning Ahead by Joe Pugliese, President and CEO 2021 did not live up to the hype! It was all supposed to be better, starting with Read the full article…
Legal Update Not the Old, Not the New, but the Necessary: Legal Review of 2021 by Elizabeth “Issie” Karan, Legal Counsel 2021 brought new but also familiar opportunities and challenges Read the full article…
Washington Update Year in Review by Johanna Gray, Advocacy Consultant We had an active year in Washington, working to advocate on behalf of HTCs and the broader bleeding disorders community, Read the full article…
Payer Update Payer Team Update by Jeff Blake, Senior Vice President of Payer Relations 2021 was another busy year for the Payer Team. Our focus this year was to increase Read the full article…
Allilance Board Update Update on New and Departing Alliance Board Members by Eric Gray, Vice Chair The mission of the Hemophilia Alliance is to work “to ensure member Hemophilia Treatment Read the full article…
Alliance Update Operations Update by Sean Singh, Senior Vice President of Marketing and Operations As we look in the rearview mirror on the past year it has a lot of Read the full article…
Notes from the Community Hemophilia Alliance Foundation Announces 2022 Project/Patient Assistance Grant Are you a nonprofit organization that serves the inherited bleeding and thrombotic disorders community? Are you looking for Read the full article…
