Notes from Joe Harmony in Hemophilia by Joe Pugliese, President and CEO When we started the group purchasing organization in 2005, we promised the community that we would invest in Read the full article…
In this Issue… Notes from Joe · Harmony in Hemophilia Legal Update · Grants Management that Makes Sense Washington Update · Join us for the Alliance Hill Day! Payer Update Read the full article…
Legal Update Grants Management that Makes Sense by Elizabeth “Issie” Karan, Legal Counsel Hemophilia Treatment Centers (HTCs) often must grapple with grey areas when it comes to compliance with the Read the full article…
Washington Update Join us for the Alliance Hill Day! by Johanna Gray, Advocacy Consultant We are excited to be planning for the 2022 Hemophilia Alliance Virtual Hill Day in April, Read the full article…
Payer Update Request for Coverage of Desmopressin Acetate Nasal Spray (DDAVP) In August of 2021, in a combined effort with the National Hemophilia Foundation (NHF) and Hemophilia Federation of America Read the full article…
In October 1992, there were 5 NHF men (depicted in picture) who were determined to change the NHF narrative. The picture depicts Jonathan Botello, Dana Kuhn, Val Bias, Rich David, Read the full article…
In this Issue… Notes from Joe· Looking Back, Planning Ahead Legal Update· Not the Old, Not the New, but the Necessary: Legal Review of 2021 Washington Update· Year in Review Read the full article…
Notes from Joe Looking Back, Planning Ahead by Joe Pugliese, President and CEO 2021 did not live up to the hype! It was all supposed to be better, starting with Read the full article…
Legal Update Not the Old, Not the New, but the Necessary: Legal Review of 2021 by Elizabeth “Issie” Karan, Legal Counsel 2021 brought new but also familiar opportunities and challenges Read the full article…
Washington Update Year in Review by Johanna Gray, Advocacy Consultant We had an active year in Washington, working to advocate on behalf of HTCs and the broader bleeding disorders community, Read the full article…
