Marketing and Operations Team Update Alliance Marketing and Operations Team Tours an HTC! by Marketing & Operations Team Our mighty team of 4 is often ‘the men and women behind Read the full article…
Notes from the Community Help Share NBDF and NYU Survey of Bleeding Disorders Community! Since it announced its new name last fall, the National Bleeding Disorders Foundation (NBDF) has been Read the full article…
In this Issue… Jeff Weighs In Alliance Update · How will you be spending World Hemophilia Day this April 17th, 2024? · Upcoming Meeting Schedules Advocacy and Legal Team Update Read the full article…
Jeff Weighs In by Jeff Blake, President and CEO Your browser does not support HTML video. Also in this Issue… Alliance Update · How will you be spending World Hemophilia Read the full article…
Alliance Update How will you be spending World Hemophilia Day this April 17th, 2024? by Marketing & Operations Team
Advocacy and Legal Update Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act by Elizabeth “Issie” Karan, Legal Counsel and Artemis Policy Group Earlier this month Read the full article…
Member and Community Relations Update Gene Therapy – Hemophilia Alliance Network Services (HANS) Opportunity by Zack Duffy, Director MCR and Roland Lamy, VP Payer We are excited to announce Read the full article…
Notes from the Community 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!! by Karen Bowe-Hause, Director MCR Hemophilia Alliance is again collaborating with NBDF Read the full article…
In this Issue… · Welcome 2024 Advocacy Update · Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community Washington Update · Proposed Rule on Affordable Care Act Read the full article…
Advocacy Update Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community by Dean M. Hindenlang, Ph.D. Chair, Advocacy Committee and Secretary, Board of Directors Each year, scores Read the full article…
