Hemo Alliance Newsletters

Notes from the Community, April 2024

Notes from the Community

4th National HTC Patient Satisfaction Survey Underway

The Hemophilia Alliance is pleased to promote the 2024 National HTC Patient Satisfaction Survey (PSS), which was developed by HTC Networks and Patient Satisfaction Survey (PSS) Steering Committee, representing the HTCs in the US. This is the fourth iteration of a patient satisfaction survey; the input received from patients and families through past surveys helped HTCs identify areas where they may have strengths and where they need to improve.

The survey should be completed by patients and caregivers that had contact with an HTC in 2023. The survey is open until May 31, 2024 and can be completed online at www.htcsurvey.com.

The PSS Steering Committee has prepared materials that HTCs can utilize with patients to encourage them to participate in the survey. Please contact Eleanor Carrick at carricke@ohsu.edu with any additional questions.

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program
· New Leadership at the Office of Pharmacy Affairs
· Matsui Introduces Legislation to Codify the Use of Contract Pharmacies in the 340B Program

Washington Update
· Hemophilia Alliance Hill Day Focuses on 340B and Alternative Funding Programs

Member and Community Relations Update
· Linda Gammage Social Work Conference Great Success

Marketing and Operations Team Update
· Post-New HTC Staff Orientation Update
· Upcoming Meeting Schedules

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670