Member and Community Relations Update

Genetic Testing Program Launched by Hemophilia Alliance
by Angie Blue, Director of Member and Community Relations

The Hemophilia Alliance is excited to announce a new Genetic Testing Program to provide access to Hemophilia A, Hemophilia B, and von Willebrand’s Disease Genetic Testing for patients of Hemophilia Alliance Member Treatment Centers. The Hemophilia Alliance Board of Directors has approved funding for this Program to provide access to genetic testing services. The testing program will launch on August 1, 2024.

The program is for patients who do not have insurance coverage for genetic testing or whose out-of-pocket costs associated with such testing is prohibitive. The testing will be available on a first come, first served basis until the funding has been depleted. The Alliance has contracted with two testing labs to provide the testing services, Bloodworks NW in Washington state and Versiti in Wisconsin. HTC providers can decide which testing lab they want to use.

If your HTC already has a Genetic Testing patient assistance program in place and uses 340B Program Income to cover genetic testing for patients, please use your internal program to allow the Hemophilia Alliance funding to reach more patients who do not currently have access. If you have questions about setting up an internal program, please contact your Member & Community Relations representative.

For more information on this new program see the Hemophilia Alliance Fact Sheet and FAQ’s or contact Angela Blue (angela@hemoalliance.org) or Jennifer Borrillo (borrillo@hemoalliance.org), who are managing this program. Watch your email for more information on the program and an upcoming webinar.