Hemo Alliance Newsletters

Alliance Update, July 2024

Administration and Operations Update

Welcome to Our New Online Home!
by Administration & Operations Team

After months of dedication and hard work from our team, we are thrilled to finally unveil our fresh look and enhanced user experience. Our new site features a new search engine that allows you to search through our large library of documents, improved navigation, and updated content to better serve your needs. Whether you are browsing from a desktop computer or a mobile device, we have optimized every page for seamless interaction.

As a member of the Alliance and after logging in, you’re greeted with a friendly and welcoming “Member Dashboard”. Here you will have direct access to our meetings and events calendar, and you will see who your Alliance contact is right from the main dashboard. We invite you to visit us at https://hemoalliance.org and experience the difference for yourself. Once again, welcome to our new online home!


Hemophilia Alliance’s 1st Annual Nurses Continuing Education Conference
by Stephanie Sibrel, Nurse Conference Planning Committee

The Hemophilia Alliance was pleased to welcome over 50 nurses in-person from its member HTCs and more than 30 nurses that attended virtually to the inaugural Nurses Continuing Education (CE) Conference, June 10-12, 2024, held at the Westin Portland Harborview in scenic Portland, Maine.

Team Alliance and the Nursing Planning Committee’s goals for the Nurses CE Conference were to support nurses caring for bleeding disorders patients at member Hemophilia Treatment Centers (HTCs). The Hemophilia Alliance’s 1st Annual Nurses CE Conference provided education on topics relevant to national grant goals, the 50-year history of HTCs and bleeding disorder care, nursing leadership and business aspects unique to HTCs, and the increasing complexities of caring for aging bleeding disorders patients.

The hope is that the nurses that attended the conference feel that they are better equipped for their role, not only through the continuing education component, but that they also had the opportunity to meet and build relationships with a network of equally enthusiastic HTC nursing colleagues who provide support, encouragement, and mentorship. The Alliance plans to hold the nursing conference on a regular basis to encourage collaboration, education, and to enrich the care of bleeding disorders patients, as well as HTC nurse wellness and retention.


Upcoming Meetings

MEETINGDATE
Fall Members Meeting [REGISTER NOW]October 9 – 11, 2024 (New Orleans, LA)

Physicians and Business Administrators Meeting [REGISTER NOW]

November 14 – 17, 2024 (Las Vegas, NV)

2025 Pharmacist CE Conference [SAVE THE DATE]

January 22 – 24, 2025 (TBD)

2025 Linda Gammage Social Worker CE Conference [SAVE THE DATE]

February 26 – 28, 2025 (TBD)

 

Also In This Issue…
Jeff Weighs In
Alliance Board Update
  • Alliance Seeking Board Nominations
Advocacy and Legal Update
  • 340 Reform Bill Introduced in House
  • SCOTUS Opinion Ends Deference to Agency Interpretations – What Could this Mean for the 340B Program?
  • U.S. Federal Trade Commission (FTC) Releases Scathing Report on PBMs
MCR Update
  • Genetic Testing Program Launched by Hemophilia Alliance
Notes From The Community
  • Do you have a passion for sharing your knowledge and experience in hemophilia care and management?

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670