Administration and Operations Update
Welcome to Our New Online Home!
by Administration & Operations Team
After months of dedication and hard work from our team, we are thrilled to finally unveil our fresh look and enhanced user experience. Our new site features a new search engine that allows you to search through our large library of documents, improved navigation, and updated content to better serve your needs. Whether you are browsing from a desktop computer or a mobile device, we have optimized every page for seamless interaction.
As a member of the Alliance and after logging in, you’re greeted with a friendly and welcoming “Member Dashboard”. Here you will have direct access to our meetings and events calendar, and you will see who your Alliance contact is right from the main dashboard. We invite you to visit us at https://hemoalliance.org and experience the difference for yourself. Once again, welcome to our new online home!
Hemophilia Alliance’s 1st Annual Nurses Continuing Education Conference
by Stephanie Sibrel, Nurse Conference Planning Committee
The Hemophilia Alliance was pleased to welcome over 50 nurses in-person from its member HTCs and more than 30 nurses that attended virtually to the inaugural Nurses Continuing Education (CE) Conference, June 10-12, 2024, held at the Westin Portland Harborview in scenic Portland, Maine.
Team Alliance and the Nursing Planning Committee’s goals for the Nurses CE Conference were to support nurses caring for bleeding disorders patients at member Hemophilia Treatment Centers (HTCs). The Hemophilia Alliance’s 1st Annual Nurses CE Conference provided education on topics relevant to national grant goals, the 50-year history of HTCs and bleeding disorder care, nursing leadership and business aspects unique to HTCs, and the increasing complexities of caring for aging bleeding disorders patients.
The hope is that the nurses that attended the conference feel that they are better equipped for their role, not only through the continuing education component, but that they also had the opportunity to meet and build relationships with a network of equally enthusiastic HTC nursing colleagues who provide support, encouragement, and mentorship. The Alliance plans to hold the nursing conference on a regular basis to encourage collaboration, education, and to enrich the care of bleeding disorders patients, as well as HTC nurse wellness and retention.
Upcoming Meetings
MEETING | DATE |
---|---|
Fall Members Meeting [REGISTER NOW] | October 9 – 11, 2024 (New Orleans, LA) |
Physicians and Business Administrators Meeting [REGISTER NOW] | November 14 – 17, 2024 (Las Vegas, NV) |
2025 Pharmacist CE Conference [SAVE THE DATE] | January 22 – 24, 2025 (TBD) |
2025 Linda Gammage Social Worker CE Conference [SAVE THE DATE] | February 26 – 28, 2025 (TBD) |
Also In This Issue…
Jeff Weighs In
Alliance Board Update
- Alliance Seeking Board Nominations
Advocacy and Legal Update
- 340 Reform Bill Introduced in House
- SCOTUS Opinion Ends Deference to Agency Interpretations – What Could this Mean for the 340B Program?
- U.S. Federal Trade Commission (FTC) Releases Scathing Report on PBMs
MCR Update
- Genetic Testing Program Launched by Hemophilia Alliance
Notes From The Community
- Do you have a passion for sharing your knowledge and experience in hemophilia care and management?