Notes From The Community
Do you have a passion for sharing your knowledge and experience in hemophilia care and management?
The Hemophilia Federation of America is excited to invite speakers from leading experts in the field of hemophilia to speak at our upcoming conference, HFA Symposium 2025 in beautiful San Diego, CA, March 27-30, 2025. This conference will bring together patients, caregivers, healthcare professionals, researchers, and industry leaders to share the latest advancements, best practices, and personal stories related to hemophilia.
We are seeking speakers who can address a variety of topics, including:
- New and emerging therapies for hemophilia
- Management of bleeding complications
- Optimizing long-term care for individuals with hemophilia
- The psychosocial impact of living with hemophilia
- Advocacy and access to care
- Aging with a bleeding disorder
- Women and bleeding disorders
Speaker Benefits:
- Opportunity to share your expertise with a dedicated audience
- Platform to contribute to the advancement of hemophilia care
- Travel and accommodation assistance may be available (if applicable)
- Recognition in conference materials
To Apply: Please submit an abstract of your proposed presentation (250 words) and a brief bio (100 words) by August 31, 2025, to j.chupka@hemophiliafed.org
Also In This Issue…
Jeff Weighs In
Alliance Board Update
- Alliance Seeking Board Nominations
Advocacy and Legal Update
- 340 Reform Bill Introduced in House
- SCOTUS Opinion Ends Deference to Agency Interpretations – What Could this Mean for the 340B Program?
- U.S. Federal Trade Commission (FTC) Releases Scathing Report on PBMs
MCR Update
- Genetic Testing Program Launched by Hemophilia Alliance
Administration and Operations Update
- Welcome to Our New Online Home
- Hemophilia Alliance’s 1st Annual Nurses Continuing Education Conference
- Upcoming Meetings