Hemo Alliance Newsletters

Notes from the Community, July 2024

Notes From The Community

Do you have a passion for sharing your knowledge and experience in hemophilia care and management?

The Hemophilia Federation of America is excited to invite speakers from leading experts in the field of hemophilia to speak at our upcoming conference, HFA Symposium 2025 in beautiful San Diego, CA, March 27-30, 2025. This conference will bring together patients, caregivers, healthcare professionals, researchers, and industry leaders to share the latest advancements, best practices, and personal stories related to hemophilia.

We are seeking speakers who can address a variety of topics, including:

  • New and emerging therapies for hemophilia
  • Management of bleeding complications
  • Optimizing long-term care for individuals with hemophilia
  • The psychosocial impact of living with hemophilia
  • Advocacy and access to care
  • Aging with a bleeding disorder
  • Women and bleeding disorders

Speaker Benefits:

  • Opportunity to share your expertise with a dedicated audience
  • Platform to contribute to the advancement of hemophilia care
  • Travel and accommodation assistance may be available (if applicable)
  • Recognition in conference materials

To Apply: Please submit an abstract of your proposed presentation (250 words) and a brief bio (100 words) by August 31, 2025, to j.chupka@hemophiliafed.org

Also In This Issue…
Jeff Weighs In
Alliance Board Update
  • Alliance Seeking Board Nominations
Advocacy and Legal Update
  • 340 Reform Bill Introduced in House
  • SCOTUS Opinion Ends Deference to Agency Interpretations – What Could this Mean for the 340B Program?
  • U.S. Federal Trade Commission (FTC) Releases Scathing Report on PBMs
MCR Update
  • Genetic Testing Program Launched by Hemophilia Alliance
Administration and Operations Update
  • Welcome to Our New Online Home
  • Hemophilia Alliance’s 1st Annual Nurses Continuing Education Conference
  • Upcoming Meetings

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670