Notes from the Community, December 2022

Notes from the Community

Hemophilia Alliance Foundation: Announcing Project and Patient Assistance Grants!

Starting December 1st applications will be available on-line for the Hemophilia Alliance Foundation 2023 Project and Patient Assistance Grants. Since 2009, the Alliance Foundation has awarded over $4 million in grants to help 140+ chapters, treatment centers, and national community organizations serving persons with heritable bleeding and thrombotic disorders. The cycle of funding currently available is for the following two types of grants:

  • Project grants meant to enable eligible organizations to build on their capacity to achieve and expand their mission
  • Patient assistance grants meant to render direct patient/family financial assistance through eligible organizations to alleviate financial hardship as a result of, or which impacts on, the management of a bleeding or thrombotic disorder.
  • To be eligible the applicant organization must serve persons with heritable bleeding and thrombotic disorders and operate under IRS tax exemption 501(c)(3) or 170(c)(1) or other nonprofit status. The deadline for application submission is January 31, 2023, and must be submitted directly on the Hemophilia Alliance Foundation website.

    For 2023, the ceiling for grant applications is as follows:

  • Local applicants (e.g., chapters/member organizations, HTCs): $8,000
  • National organizations, and the eight HHS-designated federally-funded regional core coordinating centers: $10,000

Applications for project grants should demonstrate clear, measurable outcomes and a strong commitment to the heritable bleeding and thrombotic disorders community. The patient assistance grant application has been shortened this year, but requires submission of the organization’s patient assistance policy.

Organizations interested in submitting applications should review the 2023 Grant Guidance thoroughly before finalizing their applications. See our website at for more information and apply on-line today!

If your organization–or an organization you know–is interested in applying but feels like it does not have the capacity or expertise to do so, please reach out to Brenda Riske, HAF Chair, at! We can direct you to additional resources that will help you submit a strong application.

Also in this Issue…

Notes from Joe
· Looking Back on 2022

Alliance Board Update
· Welcome New Alliance Board Members!

Alliance Update
· Save the Date for Alliance Meetings for 2023!
· HTC Wall of Walkers 2022 Update
· Flashback to the Fall HTC Member Meeting in October

Legal Update
· Alliance Legal Activities Recap

Washington Update
· 2022 Wrap Up

Payer Update
· Recap of Payer Activity

Comments are closed.