Hemo Alliance Newsletters

Notes from the Community, January 2024

Notes from the Community

WFH 2024 World Congress taking place this April

Do you want to learn about the very latest developments in our field? The WFH 2024 World Congress—taking place in Madrid, Spain, from April 21 to 24—is an unparalleled opportunity for participants to connect, learn, and collaborate in one of Europe’s most dynamic and well-connected cities. The event will bring all stakeholders from the international bleeding disorders community together in one place. That includes patients, family members, healthcare professionals, researchers, policy makers, advocates, and industry members.

The WFH 2024 World Congress will include over 90 hours of continuing educational sessions across Medical and People with Bleeding Disorders (PWBD) tracks, and six professional development tracks: Nurses, Dental, Laboratory Sciences, Psychosocial, Musculoskeletal (MSK) and Women and Girls with Bleeding Disorders (WGBD). The World Congress will feature world-class plenary and session speakers, interactive sessions, workshops, panel discussions and innovative industry symposia.

To learn more about the WFH 2024 World Congress and to register visit: www.wfh.org/congress.

Also in this Issue…


· Welcome 2024

Advocacy Update
· Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community

Washington Update
· Proposed Rule on Affordable Care Act Provisions Published
· Congress Puts Off Funding Bills Until March
· CMS Publishes Prior Authorization Final Rule

Legal Update
· Legal Team Update: Beware! Scammers Steal Funds from Department of Health and Human Services (HHS) Grant Recipients

Member and Community Relations Update
· “The January Blues”

Alliance Update
· Viva Engage! Hemophilia Alliance Virtual Networking Platform
· 2024 Meeting Schedules

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Jazzmine Brown, MBA, MSW, LCSW jazzmine@hemoalliance.org 770-570-2649
Ashley Castello, MEd ashley@hemoalliance.org 225-266-5062
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Julie Lichterman julie@hemoalliance.org 941-779-5971
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670