Hemo Alliance Newsletters

The Alliance Pharmacy Update, August 2024

The Alliance Pharmacy Update

The TAP Safety Net
by Michael V. Fusaro, Senior Pharmacist and Head of Regulatory Compliance, The Alliance Pharmacy

The heat and intense weather of the summer made for a busy July and August for Alliance HTC members. In July, Hurricane Beryl caught many areas off guard and underscored the critical importance of reliable healthcare partnerships within The Hemophilia Alliance. Beryl caused widespread communication outages, disrupting numerous healthcare services. UT Southwestern faced a significant challenge when their contract pharmacy went offline due to the storm. In such moments of crisis, ensuring patients receive their necessary medications without delay is paramount.

Fortunately, UT Southwestern had established a pharmacy service agreement with The Alliance Pharmacy (TAP), enabling them to activate the “TAP safety net.” This agreement proved essential, allowing UT Southwestern to dispense medications immediately and without interruption. The TAP safety net provides an additional layer of security for patient care, allowing member organizations to ensure seamless treatment even amidst chaos.

UT Southwestern’s experience during Hurricane Beryl is a powerful testament to the value of preparedness. By establishing a pharmacy service agreement with The Alliance Pharmacy, they navigated an unprecedented crisis with efficiency and care.

Natural Disasters are not the only obstacle that Hemophilia Treatment Centers may face. Staffing, patient travel, and licensing obstacles can often interrupt a center’s ability to put medication in the hands of a patient. The ability to dispense medication without delay is not just convenient; it is essential for the bleeding disorder patient population. The TAP safety net ensures that member organizations have additional tools to meet their patients’ needs, no matter the disruption. Your Hemophilia Alliance MCR team can answer questions and assist your center in adding the TAP Safety net as an option for your patients and ensuring the continuity of care.

 

Also In This Issue…
Jeff Weighs In
MCR Update
  • TAP into Your Future – MCR Team and TAP Work Together
  • Hemophilia Alliance Genetic Testing Program Webinar Update
Advocacy and Legal Update
  • The Food and Drug Administration Finalizes Regulation of Laboratory Developed Tests
  • Medicare Physician Fee Schedule Proposed Rule – Clotting Factor/Gene Therapy Proposal
Administration and Operations Update
  • Join Our Upcoming Meetings

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670