Alliance Update, April 2024

Marketing and Operations Team Update
  • Post-New HTC Staff Orientation Update
  • by Marketing & Operations Team

    We were very excited to return to New York City this past March for our New HTC Staff meeting. We got to see many new faces from the Centers, along with a turnout of over 60 attendees – ranging from administrators, nurses, social workers, program coordinators and many others in clinical roles. Although the meeting only lasted a day and a half, our agenda was loaded with valuable information that the attendees could take home and use at their centers.


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    “It was explained in a simple way and I was able to come out with a much deeper understanding.”


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    One attendee commented, “I think the best part was being able to network and meet with other HTCs and get to see what other roles and stuff they are working on.”


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    Alex Kireilis from Mass General Brigham center in Boston also added his perspective as an attendee, “Backed by the support of key sponsors including CSL Behring, Genentech, and Sanofi, the Hemophilia Alliance’s 2024 New HTC Staff Orientation was immensely informative and engaging. The orientation was a well-rounded event beginning with a lively welcoming reception providing a meet and greet opportunity for attendees to network with the Alliance staff, as well as members of other HTC’s around the country. It proceeded to include 2 days of diverse, interactive, and educational presentations. Presenters included the expert leadership staff of the Alliance, individuals with hemophilia, highly regarded HTC staff members, and representatives of the aforementioned sponsors. This lineup of knowledgeable speakers provided education ranging from regulatory requirements of operating an HTC, to the commitment the sponsors have made to the hemophilia space including product development and patient support, all the way down to the importance of advocacy by every individual associated with the HTC’s. This event provided an excellent opportunity to fast-track new HTC staff and in turn infuse added value into their respective HTC’s. Future orientations should be considered invaluable for new HTC staff and a must-attend event regardless of their role.”


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    We continue to make our meetings as engaging and informative as possible, while keeping an energetic environment for social networking. As a whole, we are excited to carry over the momentum for our meetings in the future, and we hope to see you all again soon!


  • Upcoming Meetings
  • MEETING DATE
    Physical Therapists CE Conference [ONLY VIRTUAL OPTION IS AVAILABLE] May 15 – 17, 2024
    Nurses CE Conference [ONLY VIRTUAL OPTION IS AVAILABLE] June 10 – 12, 2024
    Fall Members Meeting [SAVE THE DATE] October 9 – 11, 2024
    Physicians and Business Administrators Meeting [SAVE THE DATE] November 14 – 17, 2024

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program
· New Leadership at the Office of Pharmacy Affairs
· Matsui Introduces Legislation to Codify the Use of Contract Pharmacies in the 340B Program

Washington Update
· Hemophilia Alliance Hill Day Focuses on 340B and Alternative Funding Programs

Member and Community Relations Update
· Linda Gammage Social Work Conference Great Success

Notes from the Community
· 4th National HTC Patient Satisfaction Survey Underway

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