Events

All members have the option of attending our various HTC-centric events which include:

  • Two in-person member meetings a year (in spring and fall)
  • Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Hosts – An interactive discussion on VWD case-based experience from Takeda

Date: Tuesday, July 16, 2024 Time: 2:00pm - 3:00pm ET Discussion Topic: VWD Case-Based Experience Description: Join our expert, Dr. Maissaa Janbain, MD, for an interactive discussion about managing patients who are living with VWD. Dr. Janbain will guide you through a VWD case-based experience, including reviewing treatment history and discussing how VONVENDI may be Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A

Date: Thursday, October 17, 2024 Time: 12:00pm - 1:00pm ET Topic: Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A Objectives: Shine a light on the topic of women & girls with Hemophilia A Discuss the complexities in the diagnosis of women & girls with Hemophilia A Review real-world Read the full article...

🟥 Member Webinar : Hemophilia Alliance Presents – Navigating The Enhanced Requirements Of DSCSA As A 340B Covered Entity

Date: Wednesday, October 30, 2024 Time: 1:00pm - 2:00pm ET Title: Navigating The Enhanced Requirements Of DSCSA As A 340B Covered Entity Objectives: Review a brief history of the Drug Supply Chain Security Act and the new enhanced requirements. Understand where covered entities and their affiliated contract pharmacies fit into the supply chain. Discuss the Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Explore KOVALTRY® With Confidence by Bayer

Date: Wednesday, November 6, 2024 Time: 2:00pm - 3:00pm ET (Updated Starting Time) Topic: Explore KOVALTRY® With Confidence Overview: Clinical Trial Results, Dosing and Pharmacokinetics of KOVALTRY® in adults, adolescents and children Speaker: Maissaa Janbain, M.D., MSCR Associate Director, Louisiana Center for Bleeding and Clotting Disorders Associate Professor of Medicine, Tulane University New Orleans, LA Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Sanofi On Real World Surgical Experiences with Altuviiio

Date: Wednesday, December 4, 2024 Time: 12:00pm - 1:00pm ET       Topic: Real World Surgical Experiences with Altuviiio Description: This program will focus on sharing real-world experiences with Altuviiio, especially within a surgical context. We’ll kick things off with an introduction to Altuviiio, followed by some in-depth discussions on surgical experiences. We’ll wrap Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Novo Nordisk – Unmet Needs in Current Hemophilia Care: From Burdens to Breakthroughs

Date: Wednesday, December 18, 2024 Time: 1:00pm - 2:00pm ET         Title: Unmet Needs in Current Hemophilia Care: From Burdens to Breakthroughs Description and Session Objectives: To provide a clinical overview of the cost and treatment burden across all hemophilia types, the experience with current therapy, and unmet needs that may be Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from BioMarin on ROCTAVIAN: Improving Patient Outcomes – Latest Data & Support Initiatives

Date: Wednesday, February 19, 2025 Time: 1:00pm - 2:00pm ET       TITLE: ROCTAVIAN: Improving Patient Outcomes - Latest Data & Support Initiatives OBJECTIVE: Join us for a webinar on ROCTAVIAN (valoctocogene roxaparvovec), the groundbreaking gene therapy for severe hemophilia A. This webinar will delve into the latest clinical data updates, showcasing the long-term Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Takeda on FVIII Portfolio

Date: Thursday, March 20th, 2025 Time: 2:00pm - 3:00pm ET       TITLE: Takeda FVIII Portfolio OBJECTIVE: Please join Takeda leadership to review Takeda FVIII Products & Resources Available. INTENDED AUDIENCE: All HTC staff SPEAKER: Anthea Cherednichenko, VP US Hematology Franchise Head Anthea leads the sales and marketing teams for Takeda’s Hematology portfolio. Anthea Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Novo Nordisk on Alhemo (concizumab-mtci): A new option for patients living with hemophilia A or B with inhibitors

Date: Thursday, April 3rd, 2025 Time: 2:00pm - 3:00pm ET         WEBINAR TOPIC: Alhemo (concizumab-mtci): A new option for patients living with hemophilia A or B with inhibitors OBJECTIVE: To provide a prescribing information overview of the recently FDA approved medication, Alhemo (concizumab-mtci), for patients living with hemophilia A or B with Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Pfizer on Complications and challenges associated with hemophilia and a rebalancing approach with HYMPAVZI™ (marstacimab-hncq)

Date: Tuesday, May 6th, 2025 Time: 2:00pm - 3:00pm ET         WEBINAR TOPIC: Complications and challenges associated with hemophilia and a rebalancing approach with HYMPAVZI™ (marstacimab-hncq) OBJECTIVES: Educate attendees on complications and challenges associated with hemophilia, the novel mechanism of action of HYMPAVZI, the BASIS Ph3 clinical trial results and dosage and Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Sanofi – Exploring data and expert perspectives on Qfitlia™ (fitusiran)

Date: Wednesday, May 7th, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TOPIC: Exploring data and expert perspectives on Qfitlia™ (fitusiran) OBJECTIVE: During this program, we will explore data and expert perspectives on Qfitlia™ (fitusiran), a newly approved prophylactic treatment for patients with hemophilia A and B, with or without inhibitors. SPEAKER: Vanessa Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from BioMarin – A Collaborative Journey – ROCTAVIAN Patient & Provider Perspectives

Date: Tuesday, May 13th, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TOPIC: A Collaborative Journey - ROCTAVIAN Patient & Provider Perspectives OBJECTIVE: Join us for an insightful webinar exploring the real-world experiences of patients and providers with ROCTAVIAN. Hear firsthand accounts of the treatment journey, from initial consultations and administration to outcomes Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Octapharma – Review The Clinical Benefits of wilate®, Highlighting The Benefits vs Current vWD Therapies

Date: Tuesday, July 22nd, 2025 Time: 1:00pm - 2:00pm ET         WEBINAR TOPIC: Review the clinical benefits of wilate®, highlighting the benefits vs current vWD therapies. OBJECTIVES: Understand the attributes of wilate® for vWD: 1:1 ratio which mimics the physiologic activity of vWF and FVIII and the synchronous decay curves, which facilitates Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Pfizer On Subcutaneous HYMPAVZI (marstacimab-hncq): Learn More From a Real-World Patient Experience

Date: Wednesday, August 27th, 2025 Time: 2:00pm - 3:00pm ET           WEBINAR TITLE: Juggling Fall Routines Can Be Complicated. Help your patients keep their hemophilia treatment simple with subcutaneous HYMPAVZI (marstacimab-hncq): Learn More From a Real-World Patient Experience. OBJECTIVES: To educate attendees on challenges, shared decision making in hemophilia and introduce Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From BioMarin On Advancing Care with ROCTAVIAN® (valoctocogene roxaparvovec-rvox): Clinical Evidence, Patient Perspective & Contract Opportunities

Date: Thursday, September 4th, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TITLE: Advancing Care with ROCTAVIAN® (valoctocogene roxaparvovec-rvox): Clinical Evidence, Patient Perspective & Contract Opportunities. OBJECTIVES: Explore updates to HEM Alliance member contract terms and the associated provider economics. Review the latest clinical data updates, describing the long-term efficacy and safety of Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From BD SUMHAC – Mental Health and Substance Use in the Bleeding Disorders Community

Date: Wednesday, September 10th, 2025 Time: 1:00pm - 2:00pm ET         WEBINAR TITLE: Mental Health and Substance Use in the Bleeding Disorders Community. DESCRIPTION: The bleeding disorders community does not have the same access to inpatient and residential mental health and substance use treatment that the general population does. This webinar will Read the full article...