Events

All members have the option of attending our various HTC-centric events which include:

  • Two in-person member meetings a year (in spring and fall)
  • Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from HEMA Biologics – A different treatment option for Inhibitor patients

Date: Monday, November 27, 2023 Time: 1:00pm - 2:00pm ET TITLE: A different treatment option for Inhibitor patients OBJECTIVE: This presentation will provide an overview of inhibitors and explore the efficacy, safety, tolerability, clinical development, and reasons to consider a different treatment option. TARGET AUDIENCE: All HTC Staff SPEAKER: Guy Young, MD. Director, Hemostasis and Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Takeda – Overview of Adzynma (rADAMTS13) Prescribing Information

Date: Wednesday, November 29, 2023 Time: 1:00pm - 2:00pm ET TITLE: Overview of Adzynma (rADAMTS13) Prescribing Information OBJECTIVE: Inform on the new approval and prescribing information of Adzynma indicated for prophylactic and on-demand use for patients with congenital TTP. TARGET AUDIENCE: Hematologists, NPs, nurses, pharmacists SPEAKER: Ali Mokdad, MD, PhD, MBA, Medical Director, Takeda

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Takeda – Real-world Characterization of Female Hemophilia A Carriers in the US

Date: Tuesday, January 23, 2024 Time: 1:00pm - 2:00pm ET TITLE: Real-world Characterization of Female Hemophilia A Carriers in the US OBJECTIVE: Summarize recently published real-world data on Female Hemophilia A Carriers in the US, including clinical and healthcare resource utilization information. TARGET AUDIENCE: Hematologists, NPs, nurses, pharmacists SPEAKER: Jorge Caicedo, MD, Sr. Medical Director, Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from BD SUMHAC – Advocating for Access to Behavioral Health Treatment for the Bleeding Disorders Community

Date: Tuesday, March 5, 2024 Time: 1:00pm - 2:00pm ET TITLE: Advocating for Access to Behavioral Health Treatment for the Bleeding Disorders Community WEBINAR OBJECTIVE: This presentation will educate HTC providers about the barriers to access to inpatient and residential mental health and substance use treatment facilities for people with bleeding disorders. It will provide Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Pfizer – Exploring the Science and Possibilities of Gene Therapy in Hemophilia

Date: Thursday, March 14, 2024 Time: 1:00pm - 2:00pm ET TITLE: Exploring the Science and Possibilities of Gene Therapy in Hemophilia WEBINAR OVERVIEW: By attending this webinar, you will discover the scientific approach of gene therapy, understand gene therapy objectives for patients with hemophilia, and explore the shared decision-making process to accompany your patients in Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Genentech – Reinforcing 10+ years of clinical trial experience with a subcutaneous prophylaxis treatment

Date: Tuesday, May 7, 2024 Time: 2:00pm - 3:00pm ET TITLE: Reinforcing 10+ years of clinical trial experience with a subcutaneous prophylaxis treatment, including the latest data in infants WEBINAR OBJECTIVE: Dr. Mike Silvey will share his perspective on managing patients with hemophilia A using a subcutaneous prophylactic treatment. The presentation will include the pivotal Read the full article...

🟥 Member Webinar : Hemophilia Alliance Presents – Hemophilia Alliance Network Services/Emerging Therapy Solutions

Date: Tuesday, May 14, 2024 Time: 2:00pm - 3:00pm ET TITLE: Hemophilia Alliance Network Services/Emerging Therapy Solutions A Gene Therapy Payer Contract WEBINAR DESCRIPTION: The past twelve to eighteen months have been landmark times for gene therapy treatments for individuals with bleeding disorders. While the third party payers, reinsurers and prescription benefit plans have begun Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Bayer – Clinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi®

Date: Wednesday, June 5, 2024 Time: 1:00pm - 2:00pm ET TOPIC: Clinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi® WEBINAR OVERVIEW: This session includes key information about Jivi including, safety and efficacy data from the clinical trials, step-wise dosing and Jivi RWE Data from Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) from BioMarin

Date: Thursday, June 20, 2024 Time: 2:00pm - 3:00pm ET Title: Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) Objectives: Review coverage and typical prior authorization criteria for ROCTAVIAN Review considerations and pricing education available for single-case agreements Hemophilia Alliance’s gene therapy support for Member Hemophilia Treatment Centers Speakers: Josh Sammon, PharmD, Senior Director, Market Access, Hemophilia Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Wilate Prophylaxis in VWD – Results from the WIL-31 Study from Octapharma

Date: Tuesday, June 25, 2024 Time: 1:00pm - 2:00pm ET Title: Wilate Prophylaxis in VWD – Results from the WIL-31 Study Objectives: 1) Understand the bleeding symptoms experienced by folks with von Willebrand disease 2) Understand the benefits of wilate prophylaxis in von Willebrand disease across different ages and types 3) Understand the lack of Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – An interactive discussion on VWD case-based experience from Takeda

Date: Tuesday, July 16, 2024 Time: 2:00pm - 3:00pm ET Discussion Topic: VWD Case-Based Experience Description: Join our expert, Dr. Maissaa Janbain, MD, for an interactive discussion about managing patients who are living with VWD. Dr. Janbain will guide you through a VWD case-based experience, including reviewing treatment history and discussing how VONVENDI may be Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A

Date: Thursday, October 17, 2024 Time: 12:00pm - 1:00pm ET Topic: Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A Objectives: Shine a light on the topic of women & girls with Hemophilia A Discuss the complexities in the diagnosis of women & girls with Hemophilia A Review real-world Read the full article...

🟥 Member Webinar : Hemophilia Alliance Presents – Navigating The Enhanced Requirements Of DSCSA As A 340B Covered Entity

Date: Wednesday, October 30, 2024 Time: 1:00pm - 2:00pm ET Title: Navigating The Enhanced Requirements Of DSCSA As A 340B Covered Entity Objectives: Review a brief history of the Drug Supply Chain Security Act and the new enhanced requirements. Understand where covered entities and their affiliated contract pharmacies fit into the supply chain. Discuss the Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Explore KOVALTRY® With Confidence by Bayer

Date: Wednesday, November 6, 2024 Time: 2:00pm - 3:00pm ET (Updated Starting Time) Topic: Explore KOVALTRY® With Confidence Overview: Clinical Trial Results, Dosing and Pharmacokinetics of KOVALTRY® in adults, adolescents and children Speaker: Maissaa Janbain, M.D., MSCR Associate Director, Louisiana Center for Bleeding and Clotting Disorders Associate Professor of Medicine, Tulane University New Orleans, LA Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Sanofi On Real World Surgical Experiences with Altuviiio

Date: Wednesday, December 4, 2024 Time: 12:00pm - 1:00pm ET       Topic: Real World Surgical Experiences with Altuviiio Description: This program will focus on sharing real-world experiences with Altuviiio, especially within a surgical context. We’ll kick things off with an introduction to Altuviiio, followed by some in-depth discussions on surgical experiences. We’ll wrap Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Novo Nordisk – Unmet Needs in Current Hemophilia Care: From Burdens to Breakthroughs

Date: Wednesday, December 18, 2024 Time: 1:00pm - 2:00pm ET         Title: Unmet Needs in Current Hemophilia Care: From Burdens to Breakthroughs Description and Session Objectives: To provide a clinical overview of the cost and treatment burden across all hemophilia types, the experience with current therapy, and unmet needs that may be Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from BioMarin on ROCTAVIAN: Improving Patient Outcomes – Latest Data & Support Initiatives

Date: Wednesday, February 19, 2025 Time: 1:00pm - 2:00pm ET       TITLE: ROCTAVIAN: Improving Patient Outcomes - Latest Data & Support Initiatives OBJECTIVE: Join us for a webinar on ROCTAVIAN (valoctocogene roxaparvovec), the groundbreaking gene therapy for severe hemophilia A. This webinar will delve into the latest clinical data updates, showcasing the long-term Read the full article...