All members have the option of attending our various HTC-centric events which include:
Date: January 24 - 26 Location: Charleston, South Carolina Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
Date: Febuary 28 - March 1 Location: New Orleans, LA Please contact Jeff Amond with any questions regarding this registration at amond@hemoalliance.org or 608-206-3132.
Date: Tuesday, March 5, 2024 Time: 1:00pm - 2:00pm ET TITLE: Advocating for Access to Behavioral Health Treatment for the Bleeding Disorders Community WEBINAR OBJECTIVE: This presentation will educate HTC providers about the barriers to access to inpatient and residential mental health and substance use treatment facilities for people with bleeding disorders. It will provide Read the full article...
Date: Thursday, March 14, 2024 Time: 1:00pm - 2:00pm ET TITLE: Exploring the Science and Possibilities of Gene Therapy in Hemophilia WEBINAR OVERVIEW: By attending this webinar, you will discover the scientific approach of gene therapy, understand gene therapy objectives for patients with hemophilia, and explore the shared decision-making process to accompany your patients in Read the full article...
Date: March 25 - 27 Location: TBD PLEASE NOTE REGISTRATION FOR THIS MEETING WILL CLOSE ON FEBRUARY 9, 2024. Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
Date: April 3rd (Pre-Summit Workshops) Date: April 4th - 6th (Chicago, IL & Virtual) Click here for info.
Date: April 15 - 18 Location: Washington, DC Monday 4/15 – Welcome Reception Tuesday 4/16 – Spring Members Meeting Wednesday 4/17 – Spring Members Meeting, Hill Day Training and Joe’s Retirement Party Thursday 4/18 – Hemophilia Alliance Hill Day Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
Date: Tuesday, May 7, 2024 Time: 2:00pm - 3:00pm ET TITLE: Reinforcing 10+ years of clinical trial experience with a subcutaneous prophylaxis treatment, including the latest data in infants WEBINAR OBJECTIVE: Dr. Mike Silvey will share his perspective on managing patients with hemophilia A using a subcutaneous prophylactic treatment. The presentation will include the pivotal Read the full article...
Date: Tuesday, May 14, 2024 Time: 2:00pm - 3:00pm ET TITLE: Hemophilia Alliance Network Services/Emerging Therapy Solutions A Gene Therapy Payer Contract WEBINAR DESCRIPTION: The past twelve to eighteen months have been landmark times for gene therapy treatments for individuals with bleeding disorders. While the third party payers, reinsurers and prescription benefit plans have begun Read the full article...
Date: May 15 - 17 Location: Aurora, CO Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.
Date: Wednesday, June 5, 2024 Time: 1:00pm - 2:00pm ET TOPIC: Clinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi® WEBINAR OVERVIEW: This session includes key information about Jivi including, safety and efficacy data from the clinical trials, step-wise dosing and Jivi RWE Data from Read the full article...
Date: June 10 - 12 Location: Portland, Maine
Date: Thursday, June 20, 2024 Time: 2:00pm - 3:00pm ET Title: Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) Objectives: Review coverage and typical prior authorization criteria for ROCTAVIAN Review considerations and pricing education available for single-case agreements Hemophilia Alliance’s gene therapy support for Member Hemophilia Treatment Centers Speakers: Josh Sammon, PharmD, Senior Director, Market Access, Hemophilia Read the full article...
Date: Tuesday, June 25, 2024 Time: 1:00pm - 2:00pm ET Title: Wilate Prophylaxis in VWD – Results from the WIL-31 Study Objectives: 1) Understand the bleeding symptoms experienced by folks with von Willebrand disease 2) Understand the benefits of wilate prophylaxis in von Willebrand disease across different ages and types 3) Understand the lack of Read the full article...
Date: Thursday, July 11, 2024 Time: 1:00pm - 2:00pm ET Title: Understanding the difference between Copay Accumulators, Copay Maximizers, and Alternative Funding Programs. Objectives: In this comprehensive session, attendees will gain a deep understanding of three critical elements of the difference between patient access barriers: copay accumulators, copay maximizers, and alternative funding programs. This talk Read the full article...
Date: Tuesday, July 16, 2024 Time: 2:00pm - 3:00pm ET Discussion Topic: VWD Case-Based Experience Description: Join our expert, Dr. Maissaa Janbain, MD, for an interactive discussion about managing patients who are living with VWD. Dr. Janbain will guide you through a VWD case-based experience, including reviewing treatment history and discussing how VONVENDI may be Read the full article...
Date: Wednesday, August 21, 2024 Time: 1:00pm - 2:00pm ET Title: Hemophilia Alliance Genetic Testing Program Hemophilia Alliance has introduced a new Genetic Testing Program as of August 1, 2024. This initiative offers genetic testing for individuals with Hemophilia A, Hemophilia B, and von Willebrand’s disease. The program is specifically designed for patients receiving Read the full article...
Date: September 12 - 14, 2024 (Atlanta, GA) Click here for info.
Date: September 13 - 15, 2024 (Long Beach, CA) Click here for info.
Date: September 22 - 24, 2024 (Phoenix, AZ) Click here for info.
