Events

All members have the option of attending our various HTC-centric events which include:

  • Two in-person member meetings a year (in spring and fall)
  • Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Sanofi On Real World Surgical Experiences with Altuviiio

Date: Wednesday, December 4, 2024 Time: 12:00pm - 1:00pm ET       Topic: Real World Surgical Experiences with Altuviiio Description: This program will focus on sharing real-world experiences with Altuviiio, especially within a surgical context. We’ll kick things off with an introduction to Altuviiio, followed by some in-depth discussions on surgical experiences. We’ll wrap Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from CSL Behring – Learn about HEMGENIX from the patient perspective

Date: Wednesday, December 11, 2024 Time: 1:00pm - 2:00pm ET         TOPIC: Learn about HEMGENIX from the patient perspective OBJECTIVE: Michael will share his personal experience after receiving HEMGENIX RECOMMENDED AUDIENCE: HTC providers, social workers, administration and support staff SPEAKER: Michael - Common Factors Advocate Hemophilia B My Life at a Glance Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Pfizer on HYMPAVZI: An anti-tissue factor pathway inhibitor

Date: Tuesday, December 17, 2024 Time: 3:00pm - 4:00pm ET         TOPIC: HYMPAVZI: An anti-tissue factor pathway inhibitor OBJECTIVE: To educate attendees on the novel mechanism of action of HYMPAVZI, the Ph3 clinical trial results and indicated dosage and administration. INTENDED AUDIENCE: HCP SPEAKER: Dr. Jennifer Schumacher, PhD, Senior Medical Director, Hemophilia Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Novo Nordisk – Unmet Needs in Current Hemophilia Care: From Burdens to Breakthroughs

Date: Wednesday, December 18, 2024 Time: 1:00pm - 2:00pm ET         Title: Unmet Needs in Current Hemophilia Care: From Burdens to Breakthroughs Description and Session Objectives: To provide a clinical overview of the cost and treatment burden across all hemophilia types, the experience with current therapy, and unmet needs that may be Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from BioMarin on ROCTAVIAN: Improving Patient Outcomes – Latest Data & Support Initiatives

Date: Wednesday, February 19, 2025 Time: 1:00pm - 2:00pm ET       TITLE: ROCTAVIAN: Improving Patient Outcomes - Latest Data & Support Initiatives OBJECTIVE: Join us for a webinar on ROCTAVIAN (valoctocogene roxaparvovec), the groundbreaking gene therapy for severe hemophilia A. This webinar will delve into the latest clinical data updates, showcasing the long-term Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Takeda on FVIII Portfolio

Date: Thursday, March 20th, 2025 Time: 2:00pm - 3:00pm ET       TITLE: Takeda FVIII Portfolio OBJECTIVE: Please join Takeda leadership to review Takeda FVIII Products & Resources Available. INTENDED AUDIENCE: All HTC staff SPEAKER: Anthea Cherednichenko, VP US Hematology Franchise Head Anthea leads the sales and marketing teams for Takeda’s Hematology portfolio. Anthea Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Novo Nordisk on Alhemo (concizumab-mtci): A new option for patients living with hemophilia A or B with inhibitors

Date: Thursday, April 3rd, 2025 Time: 2:00pm - 3:00pm ET         WEBINAR TOPIC: Alhemo (concizumab-mtci): A new option for patients living with hemophilia A or B with inhibitors OBJECTIVE: To provide a prescribing information overview of the recently FDA approved medication, Alhemo (concizumab-mtci), for patients living with hemophilia A or B with Read the full article...