Events

All members have the option of attending our various HTC-centric events which include:

  • Two in-person member meetings a year (in spring and fall)
  • Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Sanofi – Qfitlia Overview – Clinical, Access, and Distribution Dynamics

Date: Wednesday, September 17th, 2025 Time: 2:00pm - 3:00pm ET       WEBINAR TOPIC: Qfitlia Overview: Clinical, Access, and Distribution Dynamics. OBJECTIVE: Dr. Lynn Malec will review key elements of the Qfitlia efficacy and safety profile and Adam Gurry, Sanofi Director of Access Strategy, will provide insights on the Qfitlia access and distribution strategy. Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Takeda – On-demand and Surgical Use of ADVATE® [Antihemophilic Factor (Recombinant)]

Date: Wednesday, October 1st, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TOPIC: On-demand and Surgical Use of ADVATE® OBJECTIVE: This session will explore critical aspects of hemophilia A management, focusing on the unique role of ADVATE in on-demand and perioperative settings. AUDIENCE: All HTC Staff. SPEAKER: Jessica Grandoni, Pharm.D., BCPS, was the Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Octapharma – Prophylaxis in VWD: Iron as a Metric of Success at Healing

Date: Wednesday, October 15th, 2025 Time: 2:00pm - 3:00pm ET     WEBINAR TOPIC: Prophylaxis in VWD: Iron as a Metric of Success at Healing. WEBINAR SUMMARY: A presentation on rethinking prophylaxis in VWD through a lens of healing and iron status. This presentation explores a multidimensional approach to bleeding disorders, with a focus on Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Genentech – Revolutionizing Hemophilia A Care: Nurses’ Insights on the First Subq Prophy for Hem A

Date: Thursday, October 23rd, 2025 Time: 3:00pm - 4:00pm ET       WEBINAR TITLE: Revolutionizing Hemophilia A Patient Care: Nurses’ Insights on the First Subcutaneous Prophylaxis Treatment for Hemophilia A. DESCRIPTION: Please join us for an engaging discussion featuring nurses Jennifer Maahs, RN, PNP, MSN and Joseph Stanco, MSN, DNP, CCRC as they share Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar From Novo Nordisk – Alhemo (concizumab-mtci): A new option for patients living with hemophilia

Date: Thursday, October 30th, 2025 Time: 2:00pm - 3:00pm ET       WEBINAR TOPIC: Alhemo (concizumab-mtci): A new option for patients living with hemophilia. OBJECTIVE: To provide an update on prescribing information of the recently FDA-approved indication in patients with hemophilia A or B without inhibitors, and supporting data from the explorer8 trial. AUDIENCE: Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Bayer – Jivi – With Them as They Grow™ Clinical Study Data for Children 7 to 11 Yrs

Date: Thursday, November 6th, 2025 Time: 1:00pm - 2:00pm ET           WEBINAR TOPIC: Jivi — With Them as They Grow™ Clinical Study Data for Children 7 to 11 Years. OBJECTIVE: This session provides a clinical review of safety and efficacy data drawn from both the PROTECT Kids and Alfa-PROTECT studies. Data Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Takeda – VONVENDI® [von Willebrand Factor (Recombinant)] [Now] Approved for Adults and Pediatric Patients

Date: Wednesday, November 12th, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TOPIC: VONVENDI® Approved for Adults and Pediatric Patients. OBJECTIVE: Understand the underlying mechanism of VWD and the role of VWF. Review unmet needs in the treatment of VWD. Identify the unique characteristics of VONVENDI as the first and only recombinant treatment Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from CSL Behring – The HEMGENIX Toolkit

Date: Thursday, November 13th, 2025 Time: 1:00pm - 2:00pm ET         WEBINAR TOPIC: The HEMGENIX Toolkit OBJECTIVE: Overview of the tools and resources available to treatment centers to help support patients eligible and interested in HEMGENIX AUDIENCE: All HTC Staff. SPEAKER: Bonnie Ben-Shmuel Bonnie Ben-Shmuel is a seasoned biopharmaceutical marketing leader with Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Sanofi – Translating Evidence into Practice: ​Real-World Patient Cases with ALTUVIIIO

Date: Wednesday, December 3rd, 2025 Time: 2:00pm - 3:00pm ET       WEBINAR TOPIC: Translating Evidence into Practice: ​Real-World Patient Cases with ALTUVIIIO. OBJECTIVE: This session will bring together clinical evidence and real-world experience to illustrate how ALTUVIIIO can optimize treatment and improve outcomes for patients living with Hemophilia A. AUDIENCE: All HTC Staff. Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from CSL Behring – New! Real-World Evidence to Support Optimization of Factor IX Prophylaxis

Date: Thursday, December 11th, 2025 Time: 2:00pm - 3:00pm ET         WEBINAR TITLE: New! Real-World Evidence to Support Optimization of Factor IX Prophylaxis SUMMARY: This webinar will discuss recent evidence on prophylactic treatment strategies for hemophilia B from a U.S. real-world retrospective analysis of factor IX products. The session will highlight factor Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from CSL Behring – Five-Year Analysis: Efficacy and Safety of HEMGENIX®

Date: Thursday, January 15th, 2026 Time: 1:00pm - 2:00pm ET         WEBINAR TITLE: Five-Year Analysis: Efficacy and Safety of HEMGENIX® SUMMARY: Presentation of the published efficacy and safety results of the five-year analysis of the HOPE-B clinical trial follow up. AUDIENCE: All HTC Staff. SPEAKER: Vidhi Desai, Senior Medical Director (Coagulation), US Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Takeda – Overview of Patient Tools & Support Resources

Date: Thursday, March 5th, 2026 Time: 1:00pm - 2:00pm ET         WEBINAR TOPIC: Overview of Patient Tools & Support Resources. OBJECTIVE: This presentation will provide an overview of Takeda Hematology Patient tools and Support resources and education on the navigation of these tools and resources. AUDIENCE: All HTC Staff. SPEAKERS: Carley Riehle Read the full article...

🟥 Member Event : 2026 Spring Members Meeting

Date: March 8 - 10, 2026 Location: Seattle, WA Please contact Theresa Parker with any questions regarding this registration at theresa@hemoalliance.org or 727-688-2568.

🟥 Member Webinar : Hemophilia Alliance Hosts – A Webinar from Takeda – Inhibitor Development in Hemophilia A: A Continuing Clinical Challenge Despite Therapeutic Advances

Date: Thursday, March 12th, 2026 Time: 1:00pm - 2:00pm ET         WEBINAR TOPIC: Inhibitor Development in Hemophilia A: A Continuing Clinical Challenge Despite Therapeutic Advances. OBJECTIVE: After this webinar, participants will be able to: Describe the clinical impact and risk factors for FVIII inhibitor development in Previously Untreated Patients (PUPs) Summarize key Read the full article...