Events

All members have the option of attending our various HTC-centric events which include:

  • Two in-person member meetings a year (in spring and fall)
  • Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Sanofi – Exploring data and expert perspectives on Qfitlia™ (fitusiran)

Date: Wednesday, May 7th, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TOPIC: Exploring data and expert perspectives on Qfitlia™ (fitusiran) OBJECTIVE: During this program, we will explore data and expert perspectives on Qfitlia™ (fitusiran), a newly approved prophylactic treatment for patients with hemophilia A and B, with or without inhibitors. SPEAKER: Vanessa Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from BioMarin – A Collaborative Journey – ROCTAVIAN Patient & Provider Perspectives

Date: Tuesday, May 13th, 2025 Time: 1:00pm - 2:00pm ET       WEBINAR TOPIC: A Collaborative Journey - ROCTAVIAN Patient & Provider Perspectives OBJECTIVE: Join us for an insightful webinar exploring the real-world experiences of patients and providers with ROCTAVIAN. Hear firsthand accounts of the treatment journey, from initial consultations and administration to outcomes Read the full article...