Events

All members have the option of attending our various HTC-centric events which include:

  • Two in-person member meetings a year (in spring and fall)
  • Regular Webinars educating our members on HTC operations & organizational management, payer relations, regulations and legal updates, and advocacy

🟥 Member Webinar : Hemophilia Alliance Presents – Hemophilia Alliance Network Services/Emerging Therapy Solutions

Date: Tuesday, May 14, 2024 Time: 2:00pm - 3:00pm ET TITLE: Hemophilia Alliance Network Services/Emerging Therapy Solutions A Gene Therapy Payer Contract WEBINAR DESCRIPTION: The past twelve to eighteen months have been landmark times for gene therapy treatments for individuals with bleeding disorders. While the third party payers, reinsurers and prescription benefit plans have begun Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – A webinar from Bayer – Clinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi®

Date: Wednesday, June 5, 2024 Time: 1:00pm - 2:00pm ET TOPIC: Clinical review of the Jivi® PROTECT VIII Trial and insights from HEM-POWR: A Real-World Evidence (RWE) Study of Jivi® WEBINAR OVERVIEW: This session includes key information about Jivi including, safety and efficacy data from the clinical trials, step-wise dosing and Jivi RWE Data from Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) from BioMarin

Date: Thursday, June 20, 2024 Time: 2:00pm - 3:00pm ET Title: Practice Considerations for ROCTAVIAN™ (valoctocogene roxaparvovec-rvox) Objectives: Review coverage and typical prior authorization criteria for ROCTAVIAN Review considerations and pricing education available for single-case agreements Hemophilia Alliance’s gene therapy support for Member Hemophilia Treatment Centers Speakers: Josh Sammon, PharmD, Senior Director, Market Access, Hemophilia Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Wilate Prophylaxis in VWD – Results from the WIL-31 Study from Octapharma

Date: Tuesday, June 25, 2024 Time: 1:00pm - 2:00pm ET Title: Wilate Prophylaxis in VWD – Results from the WIL-31 Study Objectives: 1) Understand the bleeding symptoms experienced by folks with von Willebrand disease 2) Understand the benefits of wilate prophylaxis in von Willebrand disease across different ages and types 3) Understand the lack of Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – An interactive discussion on VWD case-based experience from Takeda

Date: Tuesday, July 16, 2024 Time: 2:00pm - 3:00pm ET Discussion Topic: VWD Case-Based Experience Description: Join our expert, Dr. Maissaa Janbain, MD, for an interactive discussion about managing patients who are living with VWD. Dr. Janbain will guide you through a VWD case-based experience, including reviewing treatment history and discussing how VONVENDI may be Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A

Date: Thursday, October 17, 2024 Time: 12:00pm - 1:00pm ET Topic: Shining a Spotlight: The Journey to Optimize Care in Women and Girls with Hemophilia A Objectives: Shine a light on the topic of women & girls with Hemophilia A Discuss the complexities in the diagnosis of women & girls with Hemophilia A Review real-world Read the full article...

🟥 Member Webinar : Hemophilia Alliance Presents – Navigating The Enhanced Requirements Of DSCSA As A 340B Covered Entity

Date: Wednesday, October 30, 2024 Time: 1:00pm - 2:00pm ET Title: Navigating The Enhanced Requirements Of DSCSA As A 340B Covered Entity Objectives: Review a brief history of the Drug Supply Chain Security Act and the new enhanced requirements. Understand where covered entities and their affiliated contract pharmacies fit into the supply chain. Discuss the Read the full article...

🟥 Member Webinar : Hemophilia Alliance Hosts – Explore KOVALTRY® With Confidence by Bayer

Date: Wednesday, November 6, 2024 Time: 2:00pm - 3:00pm ET (Updated Starting Time) Topic: Explore KOVALTRY® With Confidence Overview: Clinical Trial Results, Dosing and Pharmacokinetics of KOVALTRY® in adults, adolescents and children Speaker: Maissaa Janbain, M.D., MSCR Associate Director, Louisiana Center for Bleeding and Clotting Disorders Associate Professor of Medicine, Tulane University New Orleans, LA Read the full article...