by Theresa Parker, Administrator

Hemophilia Alliance has been working diligently to ensure a full schedule of meetings for the upcoming year. After the difficult years of 2020-2022, it is refreshing to get back to “business as normal” and continue the trend of in-person meetings. There is a lot of activity in the hemophilia community, and it’s been an interesting exercise to navigate around these events.

We are excited to announce several new meetings in 2023 to bring together professionals in the blood disorder field to discuss important issues and advancements. These meetings will provide an important platform for attendees to network, learn from industry experts and share their own experiences. We hope to see you at one or more of these exciting events.

Mark your calendars to SAVE THE DATE!

Hemophilia Alliance Meeting Schedule for 2023

In addition to the above meetings, we are working on other meetings that you have requested. Stay tuned. More to come!

by Karen Bowe-Hause, Director Community Relations

In collaboration with the National Hemophilia Foundation, the Hemophilia Alliance was proud to sponsor the 2nd annual Unite Walk Wall of Walkers campaign, designed with the intent to inspire further partnerships between our member Hemophilia Treatment Centers & their local Chapter affiliates. The Alliance would like to congratulate the 2022 Wall of Walkers Top 5 Hemophilia Treatment Center teams who have earned top fundraising status for the Unite for Bleeding Disorders Walk in their assigned market! Collectively, the 36 member HTC teams organized raised more than $35,000 to support their local Chapters through this initiative in 2022. Each of the 5 top HTC teams will receive a $1,000 scholarship that is intended to be used to send a staff member to the 2023 Bleeding Disorders Conference that will be held August 17th-20th in Washington, DC.

The 5 winning teams are:

The Hemophilia Alliance would like to thank ALL of our member HTC teams for supporting the community, the local Chapters and NHF in one of the largest fundraising events for NHF and Chapters across the country!!

by Jennifer Anders, Manager of Data and Analytics

We had a wonderful turnout of 105 members in beautiful Salt Lake City, Utah. The Alliance values each of our members and their experiences at all our meetings and we were fortunate to receive feedback from 52 of our attendees.

We welcomed both new and old faces with 22% of the attendees experiencing their first Hemophilia Alliance meeting.

All the speakers did a wonderful job of presenting on various topics, such as the Faces of Data and the Mental Health talk, but there were a few talks that the respondents found the most useful (top 5 listed below). Gene Therapy was a hot topic at this meeting, with about 5 separate talks. We received several comments on working to consolidate the Gene Therapy topic in the future.

It was great hearing that our members enjoy these meeting and getting to network, but we also appreciate the constructive feedback we receive that helps us serve all of you better in the future. While COVID did impact attendees both prior to and after the meeting, we will continue to take the meeting spaces and any necessary precautions into account. Additionally, always feel free when registering for these meeting to provide us with any special dietary needs or restrictions. Thank you to those who took the time to respond to our survey and as we look forward to another great year in 2023, always feel free to reach out with any suggestions or feedback and we will do our best to act.