by Theresa Parker, Administrator

The Hemophilia Alliance team recently worked with Dr. Stacy Croteau to update our product guide for the Bleeding Disorders community. This year, we are excited to be offering not only printed product guides, but our very own Kiet Huynh has built an online version that can be accessed via our website.

You can choose to view the products by manufacturer or by product type. Our hope is that these materials will help educate staff and patients on the variety of treatment options available. The online version will also be regularly updated as new products arrive on the market so we can keep the community informed with the most up-to-date information.

Please take the time to check out the product guide from our website https://hemoalliance.org. Coming soon, we be offering a printed version. Please take a minute and fill out this request form to help us determine how many we need to print and share with your center or chapter office.

by Jennifer Anders, Manager of Data & Analytics

Last month we had the pleasure of hosting the 2023 New HTC Staff Meeting in NYC and welcomed 67 new faces from our member HTCs. The New HTC Staff meeting is our opportunity to get hands-on with new employees and provide an overview of how the Hemophilia Alliance works with our members. We couldn’t have asked for better weather, greater company, and we hope everyone was able to take in some amazing sights in the Big Apple!

Even more so than at our regular member meetings, we see a wide variety of HTC staff at this meeting. Over the years these roles are becoming more diverse. We saw over 20 different roles/job tiles attending this meeting including, physicians, nurses and nurse practitioner, pharmacists and pharmacy techs, administrators, and financial advisors. These meetings provide education and training on 340B and provide key networking opportunities to learn more about the benefits of the Hemophilia Alliance and what it offers its member HTCs. This year was no exception and Team Alliance couldn’t stop buzzing about how engaged and interactive this new group was!

Based on positive feedback, we want to give some major kudos to our wonderful presenters. Some of the highlighted presentations included Advocacy Updates, Building Bridges within our Community, 340B Basic Training, and all about Program Income. To quote one of our attendees, “As a new HTC employee, it was good hearing all the information about the alliance in person. Before, I had no idea what the Alliance did. It left me wanting to network more and be more involved in the community. I look forward to no longer deleting your emails”; this is exactly how we want everyone attending our meetings to feel!

The post-meeting surveys are extremely valuable to the Alliance. We love hearing all feedback, good and maybe not so good. The Alliance Team members threw a lot at the new HTC staff and based on some feedback, such as “more breaks” and “would have preferred Breakout Sessions”; we HEAR YOU! In the future we will allow additional time for people to let all the new information sink in, and incorporate breakout sessions that are relevant to specific job titles.

The Alliance plans to hold the New HTC Staff Meeting annually, so as your HTC acquires new staff look out for the 2024 meeting schedule, and don’t forget to register for the Fall Member Meeting in October!