Hemo Alliance Newsletters

Alliance Update, March 2024

Marketing and Operations Team Update
  • Alliance Marketing and Operations Team Tours an HTC!
  • by Marketing & Operations Team

    Our mighty team of 4 is often ‘the men and women behind the curtain’ as we plan meetings, keep the website running, and burry our noses in data, but last month we got to stretch our legs and spend some time touring one of our member HTCs at Arnold Palmer Hospital for Children in Orlando, FL. Getting to see first-hand all of the hard work and dedication that goes into running an HTC was both exciting and eye-opening. Meeting with the team of nurses, providers, physical therapist, social worker, and program coordinator, we got to see the comprehensive care model in action, and we enjoyed discussing some of the new changes and challenges facing HTCs today.


    [Click on image for larger version]

    As a special treat, the Arnold Palmer team gave us a demonstration of a new infusion education tool that they have developed called VainSim (Venous Access Infusion Simulator). VainSim allows patients to practice self-administering their medication safely and confidently. We were able to test this tool and we can’t wait to see the impact that this is going to have on the bleeding disorders community and beyond. While we love getting to see everyone at our member meetings, experiences like this remind us why WE WORK FOR YOU!


  • Upcoming Meetings
  • MEETING DATE
    New HTC Staff Orientation [REGISTRATION CLOSED] March 25 – 27, 2024
    Spring Members Meeting and Hill Day [REGISTER NOW] April 15 – 18, 2024
    Physical Therapists CE Conference [ONLY VIRTUAL IS STILL AVAILABLE] May 15 – 17, 2024
    Nurses CE Conference [REGISTER NOW] June 10 – 12, 2024
    Fall Members Meeting [SAVE THE DATE] October 9 – 11, 2024
    Physicians and Business Administrators Meeting [SAVE THE DATE] November 14 – 17, 2024

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· WE NEED YOU! Register for the Hemophilia Alliance Hill Day in April

Washington Update
· Congress Continues to Deliberate on 2024 Government Funding
· President Biden Releases 2025 Budget
· HHS/CMS Responds to Cyberattack on Change Healthcare

Member and Community Relations Update
· Hemophilia Alliance 3rd Annual Pharmacist Conference – January 25-26, 2024

Notes from the Community
· Help Share NBDF and NYU Survey of Bleeding Disorders Community!
· Partners Physician Academy – Applications Are Open Through April 19, 2024

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

Name Email Phone
Jeff Blake jeff@hemoalliance.org 317-657-5913
Jennifer Borrillo, MSW, LCSW, MBA borrillo@hemoalliance.org 504-376-5282
Heidi Lane, PT, DPT, PCS heidi@hemoalliance.org 435-659-1230
Jeff Amond amond@hemoalliance.org 608-206-3132
Jennifer Anders jennifer@hemoalliance.org 954-218-8509
Angela Blue, MBA angela@hemoalliance.org 651-308-3902
Karen Bowe-Hause karen@hemoalliance.org 717-571-0266
Zack Duffy zack@hemoalliance.org 503-804-2581
Michael B. Glomb MGlomb@ftlf.com 202-466-8960
Johanna Gray, MPA jgray@artemispolicygroup.com 703-304-8111
Kiet Huynh kiet@hemoalliance.org 917-362-1382
Elizabeth Karan elizabeth@karanlegalgroup.com 612-202-3240
Kollet Koulianos, MBA kollet@hemoalliance.org 309-397-8431
Roland P. Lamy, Jr. roland@hemoalliance.org 603-491-0853
Dr. George L. Oestreich, Pharm.D., MPA george@gloetal.com 573-230-7075
Theresa Parker theresa@hemoalliance.org 727-688-2568
Mark Plencner mark@hemoalliance.org 701-318-2910
Ellen Riker eriker@artemispolicygroup.com 202-257-6670