Advocacy and Legal Update Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act by Elizabeth “Issie” Karan, Legal Counsel and Artemis Policy Group Earlier this month Read the full article…
Member and Community Relations Update Gene Therapy – Hemophilia Alliance Network Services (HANS) Opportunity by Zack Duffy, Director MCR and Roland Lamy, VP Payer We are excited to announce Read the full article…
Notes from the Community 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!! by Karen Bowe-Hause, Director MCR Hemophilia Alliance is again collaborating with NBDF Read the full article…
In this Issue… · Welcome 2024 Advocacy Update · Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community Washington Update · Proposed Rule on Affordable Care Act Read the full article…
Advocacy Update Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community by Dean M. Hindenlang, Ph.D. Chair, Advocacy Committee and Secretary, Board of Directors Each year, scores Read the full article…
Washington Update by Ellen Riker & Johanna Gray, Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Proposed Rule on Affordable Care Act Provisions Published Positive developments in lawsuit about copay accumulator Read the full article…
Legal Update Legal Team Update: Beware! Scammers Steal Funds from Department of Health and Human Services (HHS) Grant Recipients by Elizabeth “Issie” Karan, Karan Legal Group, Hemophilia Alliance Legal Counsel Read the full article…
Member and Community Relations Update “The January Blues” by the Member and Community Relations Team As you painfully know, every January payers shift the landscape and HTCs experience many Read the full article…
Alliance Update Viva Engage! Hemophilia Alliance Virtual Networking Platform by Marketing & Operations Team
Notes from the Community WFH 2024 World Congress taking place this April Do you want to learn about the very latest developments in our field? The WFH 2024 World Congress—taking Read the full article…
