Notes from the Community 4th National HTC Patient Satisfaction Survey Underway The Hemophilia Alliance is pleased to promote the 2024 National HTC Patient Satisfaction Survey (PSS), which was developed by Read the full article…
Notes from the Community Help Share NBDF and NYU Survey of Bleeding Disorders Community! Since it announced its new name last fall, the National Bleeding Disorders Foundation (NBDF) has been Read the full article…
Notes from the Community 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!! by Karen Bowe-Hause, Director MCR Hemophilia Alliance is again collaborating with NBDF Read the full article…
Notes from the Community WFH 2024 World Congress taking place this April Do you want to learn about the very latest developments in our field? The WFH 2024 World Congress—taking Read the full article…
Notes from the Community Announcing Project and Patient Assistance Grants for 2024! If your organization–or an organization you know–is interested in applying but feels like it does not have the Read the full article…
Notes from the Community 2023 Unite Walk Wall of Walkers update by Karen Bowe-Hause, Director Member and Community Relations In collaboration with the National Bleeding Disorders Foundation, the Hemophilia Alliance Read the full article…
Notes from the Community Congratulations to our 2023 “Innovation Grant” recipients! by Ralph Gruppo and Amy Marquez, Hemophilia Alliance Foundation The Hemophilia Alliance Foundation is excited to announce this year’s Read the full article…
Notes from the Community Alliance Sponsors Reception for National Youth Leadership Institute (NYLI) by Karen Bowe-Hause, Director Member & Community Relations The Hemophilia Alliance was pleased to sponsor the NYLI Read the full article…
Notes from the Community Calling All Pharmacists – Do You Have Your Global Location Number? by Michael Fusaro, Director of Regulatory Compliance, The Alliance Pharmacy The Alliance Pharmacy is working Read the full article…
Notes from the Community First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials by Hemophilia Outreach Center – Green Bay, WI In a recent press release, the Hemophilia Outreach Read the full article…
